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Permalink Reply by Modern Show on April 13, 2018 at 9:26pm

Hi, not brave at all, just working through the process of acceptance, some good days some bad, of course and in denial thinking that maybe I am going to be one of the lucky ones- and the disease just suddenly burns it self out and I won't lose anymore hair!!  I really think you need to talk to some one about how you feel, I know it won't change the progression of the disease but may be helpful.  I have seen a psychologist in the past for a work stress issue, whilst at first I was reluctant as I thought I could solve the issue myself, it really really helped me.  I still think that in the near future I probably will see someone so that I can talk freely and not feel like I am harping on/ obsessed  about the condition to family and friends.  That is what I love about this forum, I feel so supported.  Agneta talk to some of the women on this forum that are now wearing wigs, they sound very positive, and wigs have improved so so much now, even the option to have eyebrows microbladed, whilst it doesn't replace your lost eyebrows it is an option. I truly am not brave, I just despair that this condition is ruining your life.  Take care and keep up the posting, ask lots of questions, as knowledge re products out there to help us is great and gives me hope that when the time comes ..so be it it will be a wig and new eyebrows. Now I have gone on too long, take care

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Permalink Reply by Shell on October 7, 2018 at 2:38pm

Hello PBsunshine,

I began a very slow type of hair loss about 10 or more years ago. 

Then I had a serious emotional upheaval in my life and lost about 60-70% of my hair. 

At that point I had a biopsy which diagnosed the frontal fibrosing alopecia, along with androgenic alopecia and the really bad stress loss. Not good. I am 55 years old and the biopsy was a year ago. 

The loss from stress did grow back in but not to what I used to have. Thankfully I had very, very thick hair to start with. 

However, I am experiencing a significant loss at my temples, some at forehead and a little on the sides from the FFA. This is of the most concern to me. 

Just reply and we can discuss

Hope you are well

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