How old were you when you started losing your hair? I was 7 years old

In your opinion, which is worst: Losing your hair as an adult or child?

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I agree

I also agree, maybe it's easier as an adult. Since I started dating my husband (at 26), he knew about my spots and my AA and he was fine with it and when we were planning a family the risk was there for my condition to worsen and we took it together. Now I'm 30 and have AT and my husband loves me just the same if not more because the pregnancy took my condition to the next level. He is so supportive.

As a child, it was soooo hard that I hid my condition. Unless a girl wears a wig, some guys won't even give them a chance. They are supportive, but I never heard of a teen falling in love with an Alopecia girl....hmmm good question-I'm going to ask my husband when he wakes tomorrow if he would have dated the "bald girl?" !!

If you are a child with AT....Im curious to see if their answer is different...I only went bald as an adult. Maybe bald as a child, they would be even more secure and say it's easier...Great question...

Thanks :) cuz I completely agree.loosing it young, before youv've learned of self- confidance ,survial skills or tools and coping metheods. To deal with feelings of lonelyness and feeling "less than" or lke a total freak, really messed up my self worth, love and love and respect for myself .
but yes, it did make me stonger ,more sensitive and compassionate.
I think losing it when your a child, kids and school can be tough..some dont understand and some are plain bullies..i lost it when I was 6-7. And elementary was a breeze..I went to jr high and was new to that school because we moved out of that area after elementary and didn't kno anyone..as well I made a lot of friends and are still with them even throughout high school I think the toughest was jr hit..especially all the change you experience in jr high (puberty) etc.. Even today I have a career ill see kids just look and laugh which doesn't bother me at all so I do think the younger you are the worse it is
Yes and it still hurts when I look back.
Hey I lost all of my hair was 4 and we went to the doctors and I got 100 shots on my head and it all grew back:) but then I started losing it again in elementary and now I'm in my last year of middle school and it's been really tough because this are kids that tease me and I just recently started taking home schooled because of it. I get about 30 shots on my head a month. And now I just found out last week that I have ulcers colitis witch is also another life long Desease, and I have to take 9 pills a day because of it:(

If you have Ulcer Colitis, it probably is because you have had an Auto-Immune disease for a while and went undiagnosed.  The Alopecia may have came on because your Immune system was so low because of that condition in the first place.  I think you need to talk to more doctor's now that you have Colitis and maybe they can help you.  Or tell your parents its ok to find a new team of doctors!

I am soo sorry kids tease you, they just don't get it, or they are insecure themselves!!!  If you want to be home schooled that's ok, but don't hide!  I hide everyday, and I am an adult.  Try to get the best education you can at your comfort and go for bigger and better!!!

 

Shots are a waste if you have some other disease...I kept getting shots and getting them and I had hair for a little while but then I got Lupus and the hair fell out. 

good luck!! xx

 

Erica

 

 

Jorge, That all sound really difficult.  I started losing my hair at 5 but it all came out when I was 6. I agree with Miss Erica, the shots are just a fix not a cure.  Those shots were terrible! The best cure is loving yourself.  Do you cover or go out uncovered?  I had a very interesting experience. I had my wig pulled off several times as a kid.  Then as an adult I made friends with this guy and he told me one day that he just had to let me know, there was a kid in his school who was wearing a wig and he pulled it off. He said he was just so curious and also did not think about how it would affect the girl. It does improve as you go on, and you can make a life surrounded by people who appreciate you for exactly who you are. Best of luck to you.

They are obviously very weak, and insecure about "how cool they are'. Any bullies I may have dealt with, guess what the do now, live on the street with addiction, they're alcoholics or live some crappy life, cuz when your not in school anymore everything changes. the "cool people" realize that they were only cool in school, but in the real world there just another person only less because they're not a NICE PERSON. you godda have a bit of a thick skin thats for sure, but don't become jaded or numb, that's callused skin/dead skin.We are more evolved, they still have that Caveman mold or fungus on there face. OH ya and I was way wrong about the "no girls will like me..." more girls, than my insecure,small minded brain could imagine, like it!! the ones who  get to know me love it.(even some guys will feel the need to compliment me... its a little awkward but you just smile and say"thanks" .my bullies are losers and even though I put myself through a rough time, hating myself  SO MUCH thinking i was" ugly a freak, who could love me? I'll never get a girlfriend. i have no face or i have a dough face" my look is what get me my workas an actor and background performer. non of the jerks from school Have been in Xmen3, IROBOT Twilight:new moon Underworld 4, supernatural,Fringe Arrow,The Killing Scooby-doo 2 Fantastic Four 1-2, ROBOCOP(2013. Cabin in the Woods ect..you get the point.Alopecia with also make you a more sensitive person, which help me puts myself in the the different mind frames or other peoples shoes when becoming a character different than me, sometime totally opposite. i godda run bru! :)

stay strong or as I say"Glabrous and Fabulous!!"   (Glabrous just sounds better than Bald or Hairless)This band and song have  been a good reminder to me, the thing we go thru in life  can make us strong because "How we survie is what make us who we are"  http://www.youtube.com/watch?v=fsKk5_xftNI


This is an idea i had to scare off the bullies ;) i shared your story just now on Fb with this  as my solution to the looser at your school.

.p.s. think he should print up a pic of me, tell them I have the same condition and make human hair wigs for kids ...made from real kids, and have told him to keep an eye out for" potential suitors". At which point he will then start to take notice of how nice a few of his bullies hair is 

Hang in there Jorge I know it's hard it gets a little easier as you become older,are the shots working at all? If not Stop. nothing worked for me. Sorry to here you have ulcers.

my daughter was13, a month after she turned 13 all of her hair was gone

My daughter was/ia 13 when this all started. How is you daughter handling it? I used to think mine was taking it well until last week after we thought we were having regrowth only to see it falling out again. She didn't want to go to her 8th grade semi formal dance, I talked her into it (btw she had a great time). But now she has told me she does NOT want to go to high school this fall. She refuses to wear a wig or anything to cover it. She only has spots of baldness, but it looks bad. I personally think it would look better if she would cut what hair she has. I guess she's holding onto all she can.

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