I have never met anyone else in my life with alopecia.

Yes it is true. I'm 38 yrs old male and I have never met anyone else with alopecia. So I'm just looking to chat share experiences. Please don't be shy.

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Permalink Reply by Halewhy on January 3, 2016 at 4:00pm
How long have you had Alopecia? Are you doing any treatments?
Permalink Reply by Eddiblueyes on January 3, 2016 at 7:14pm
I am now and I alopecia areata since the 3rd grade. As far as treatment I gave up along ago. The roller coaster of hair growing and falling out was too much. So I just spent most of life wearing hats. I put my outfit together great: have u tried treatment?
Permalink Reply by Halewhy on January 3, 2016 at 10:21pm
I'm 41, was diagnosed with Areata when I was 10. I did injections when I was diagnosed, I had so much loss that I had to cut my hair very short. Things grew in and after a couple years I had a full head of hair back. In college I lost it again, tried injections and gave up. Shaved my head and wore hats and bandanas. Being in art school helped. I kept a shaved head for about 10 years. Never did wigs. Met and married my husband as a bald girl. :-) after while things grew in enough to let my hair grow out a bit, 6 or so years later I stated getting small spots, went and got injections, they seemed to manage things for a while but there was always that fear or one popping up somewhere I couldn't hide etc. over the summer the back flared up and my derm put me in prednisone assuring no side effects. So I was on pred, getting injections once a month, topical daily. Pred made me a raging fool. So after 2 months I tapered off. Things seemed good. Soon I learned that tapering off pred causes hair loss. So now a few months after going off prednisone, I now have diffuse loss everywhere. I think this is telegen effluvium. In all the years I have not seen my alopecia presented like this. My hair is growing in clear, no spots just thin everywhere. I'm done too with all this "treatment". I think my body has just had it. I am however going to do supplements and anti inflammatory eating. I'd rather feel healthy and get that benefit. Hair would sure be nice but these darn bodies are so unpredictable sometimes huh?! I shaved my head today, had to go but new clippers cuz I threw my old ones away. I left a tuft of long bang in the front for now. It's a nice accessory while it lasts....
Permalink Reply by Nammer on January 3, 2016 at 7:08pm
You are not alone, I have not met anyone with alopecia in my city.
This site is great though you can find a lot of views positive and negative about alopecia
Send a PM if you wanna chat, had AU for 20 years now
Permalink Reply by Eddiblueyes on January 4, 2016 at 2:34am
How old are you? I'm trying to get a feel for what ur going threw. I was diagnosed 20+ yrs ago. So I know Wat it feels like:)
Permalink Reply by Eddiblueyes on January 4, 2016 at 8:27pm
Ur the second person I talked to that got it later on in life. That's weird? And to answer ur question. Don't worry I have three children none came out with alopecia. To answer ur other question I'm 38 and only met 2 ppl with alopecia and they were kids. It was a support group I found when I was maybe 35. That's when I got curious about meeting someone else with it. This site I just found maybe a week ago. I had no clue there were that many. I am the only one in my family that has it. Does ur parents have it? are u pregnant? Don't worry I havnt passed it to my kids but it was the first thing asked when they were born. Was do they have alopecia.:)it's funny how we all worry about the same things. With the same hang ups:)
Permalink Reply by Eddiblueyes on January 4, 2016 at 11:30am
Wow thanks for sharing. I did recently attend a support group and it was all kids except for one person. I've had alopecia since 3rd grade and I'm 38 now. I kind of given up on treatments. My hair does what it wants.:) I hope everything works out with the treatment. I wonder how u ended with it later in life? So u grew up normal? By normal I mean with normal growing hair?
Permalink Reply by Eddiblueyes on January 4, 2016 at 4:46pm
For some reason it doesn't let respond I'm not sure if it's too long I kind pored out a lot.lol and I can't send it:)
Permalink Reply by Eddiblueyes on January 4, 2016 at 4:47pm
I guess it was too long.lol it felt good to get it out even though I couldn't send it.:)hehe
Permalink Reply by Eddiblueyes on January 4, 2016 at 4:48pm
I'll to send it in a msg
Permalink Reply by Eddiblueyes on January 4, 2016 at 7:14pm
So how are coping with the double wammy life has thrown yo Aimee?
Permalink Reply by Eddiblueyes on January 6, 2016 at 1:51pm
Hi Aimee:) yeah it sucks I couldn't send it. I'm not sure if I can word my story quite the same.:/:) I'm happy the crohns hasn't been a problem. I here it can be painful. In short order I'm a salsa dancer. I wrote how it helped me with all the roller coasters of emotions associated with alopecia.

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