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I'm new here, but AA is not new to me
Hey everyone :) I'm new here, but AA is not new to me. Started almost two years ago and for me it's been a constant cycle of loss and regrowth. I shaved my head last June when it got really bad and probably currently have about 60% of my hair. I do ok most of the time, but some days are really tough. Would be great to talk to people going through the same thing.
Replies to This Discussion
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Permalink Reply by Rose Marie' on
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Hi Sez
I don't have alopecia (my daughter does, AU at the moment). Like you she prefers to shave her head (she also wears a wig) but not all the time.
I think it is so normal to have good and bad days. I know my daughter is 99% ok ....but there is that 1% that can catch you unawares. I'm the same I'm mostly ok but then somedays I just think blah....I don't want this for her.
If you ever just want to chat message me. You aren't alone.
Rosy
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Permalink Reply by MJ Wrick on
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Yep- about 20 years for me. I got it long enough to have a coloring disaster, then boom- I'm bald on top. Every time around I feel like I need to apologize when the wigs come out, and losing it isn't getting easier, but I have to determine myself to walk through it with strength & peace. Most days I do okay. I think a sense of humor is the biggest asset we can have walking down this road(:
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I think you're right about the humour MJ. Just today, one of my colleagues was putting a notice up to parents about a case of headlice in the centre ( I'm an early childhood teacher) I said to her "well that's not something I have to worry about!" We both had a good laugh. Do you mind if I ask you how old you were when you first experienced alopecia?
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Permalink Reply by Sharon on
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thanks for sharing. ive had alopecia areate for about 15years. it comes and goes and ive managed to hide it from everyone until now. at the moment is just really bad and i think im going to need a wig. i dont even know where to start. im single and am now sort of hiding hoping my hair will grow back before i start dating again. most of my day is about my hair, i use clip in extensions and have to check the mirror all the time to make sure you cant see the bald spots or the extensions. they say stress makes it worse but the alopecia is causing the stress.
sorry im not much help
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Permalink Reply by LaShay on
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Hey Sharon. I had AA for approx 25 years before it developed into AU, which I've been dealing with for the last year. I, too, hid it for all those years. Six months into my AU life, I met someone and had the challenge of having the "I don't have any hair" conversation. He's been cool with my wigs and even cooler when I finally revealed myself without hair. I've also shared my story with many family members and friends. I've received a lot of support. I advise you to take the big leap and trust that people will be loving and supportive. They will take their cue from you. Once I made peace with it, they reacted in kind. By no means an easy road, but it's definitely less stress.
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