Has anyone gone to see an immunologist to find out exactly what is going on in the body to attack the hair follicles? I've been tested for a thyroid problem and lupus, which occurs in family members, but I do not have. I have been thinking about trying an immunologist, but not sure if its worth it.

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That is the million dollar question. No one knows the answer, so don't bother making an appointment for that reason.

Autoimmune conditions don't have cures, are highly complex genetically and few have decent treatments that outweigh the risks of side-effects or discomfort from the treatments.

Even the people who are funding research into hair biology don't really know where they're headed. But one thing's for sure...no one is going anywhere soon with better treatments.
Did you intend that pun: "...know where they're headed."? LOL
haha.didn't notice.

Ya-know...research goes in fads and for a while science jumps on one band wagon for a while then another. None have worked. There was the trend that vaccinations could be made for just about anything and everything Then there was the work into genetics where cancer treatments could be customized for the individual. Went nowhere. Then there was gene therapy...another dead end. Now we have stem cells...see where this is going? There will always be more and more and more trends.

I can't say enough how folks with AA need to think independently about what science and research has done, has been hyped to do and what has really been accomplished. It's not for lack of trying...but the answers are rarer than rare. Look how much has been devoted in time, money and resources to find cures for the common cancers to know how impossible it is to get cures.

Where results have been found are mostly in cardiovascular disease...better diagnostic tools, safer procedures, much improved medications and improved invasive and non-invasive techniques.

For autoimmune diseases particularly musculo-skeletal and neurological conditions ( ALS, MS, etc) there has been zero progress despite decades of work and funding. Why people with AA so often believe that the ID of any little gene found lurking around a hair follicle is going to "crack the case" is truly baffling. Somewhere along the line there is way too much hype and far too little realism.
I have not gone to one...but sounds like it could be a good idea. I may go someday. You never know. What works for you may or may not work for someone else. Alopecia seems to be a very tricky disease.
Thanks for your support, Arachnia!!
Thanks marisa!

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