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Permalink Reply by tryingtobestrong on March 26, 2015 at 10:06pm

Hi, my daughter also began losing her hair around this age. She has since lost all her hair completely, grew it back completely, and is now at 70% loss again. Both times we went through phases of covering/hiding the spots. Toppick is a great product that covers bald spots well. We used clip in extensions to build hair and hide spots. We have now transitioned to a wig for the second time. It's tough! We had a traditional style synthetic wig the first go round, and have opted for a lace front glueless this go round and my daughter loves it. It is human hair. Please let me know if I can provide any more info. My daughter grew her hair back the first time with DpCP. We tried prednisone but it all fell out within a week of stopping. Does your daughter have food allergies, thyroid isse, low Vit D, etc... Was there a trigger that you can identify. Nice to meet you.

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Permalink Reply by Maureen on March 26, 2015 at 10:58pm

Hi- thank you for your response. We have been to 6 dermatologists who have all said that this is genetic? I can't think of something that would have triggered it? Are there things we should explore here?

How do I go about finding natural looking clips for a really active little girl? Has anyone ever used fake eyelashes for a 9 year old (he one eye is itchy and red from not bring protected).

Any thoughts are appreciated. Thank you!

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Permalink Reply by tryingtobestrong on March 27, 2015 at 4:19pm

I think a possible trigger for my daughter may be lyme disease.  She had flu like symptoms, went on an antibiotic, had a rash, had random joint pain and swelling, and a few months later we found her first spot.  Food allergies are also something to look into.  I believe there is a reason, something in the body is off.  She also has low vitamin D.

  I ordered the extensions off of Ebay.  They were not expensive and helped so much. 

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Permalink Reply by Jaeden's Momma on April 1, 2015 at 11:16pm

my daughter also has AA ophiasis patterned hair loss, she is very athletic and refuses to wear a wig. We use the chemo beanies from www.chemobeanies.biz. I have posted some pics of my daughter on my page If you'd like to show them to your daughter as a possible option. Jaeden loves them. We are also doing UVB therapy called an Eximer Laser, we use biotin and a children's probiotic to help with the digestive tract. We are having a very positive outcome with the Laser but as you know AA is unpredictable and this is our first experience with regrowth since she has lost almost 90% of her hair. I am also posting her progression pictures as she continues with therapy twice a week. We chose to go with the Laser Becuase it is much less painful than the injections and she had the same growth response with the laser as she did with the injections. We did both at the same time in different areas and the growth response was exactly the same!

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Permalink Reply by Lori-akaMimi on April 2, 2015 at 2:49pm

Hi, Maureen! My 6 y.o. granddaughter is AU. My best advice is to be as encouraging & positive as possible, and to follow your daughter's lead. There are many websites that are helpful. Try naaf.org (national alopecia areata foundation). They have a wealth of information, including websites for caps, scarves & wigs - plus programs, like NAAF pen pal & free informational brochures & DVD. Also, look at childrensalopeciaproject.org. There are several places that off ree wigs for children: freewigsforkids.org, hairclu.com/hairclub-for-kids & wigsforkids.org. Feel free to friend me - maybe our girls can correspond :-)

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