Is the blonde regrowth reliable?

Hi all, 

This is my first post here.  I'm a mother to a beautiful 12 year old girl who has Alopecia.  

We noticed the first bald patch, about the size of a quarter, on Halloween.  She had extremely thick, curly, dark brown/auburn hair which she rapidly lost.  By the end of January, she decided to shave her head and for for a bonded wig. 

When we shaved her head, she looked like a dalmation, with many bald patches and a few dark ones.  

Now, 5 months later, she has inch long bright blonde/white hairs all over her head.  Her bonded wig was giving her some skin issues, so she's taken it off.  

She's super excited about the regrowth, and I'm happy too -- but is there any method to this madness? 

Will it keep growing? Will it stay super fine? Will it all fall out again?  

Is there any way to know?  

I should add that she initially had the steroid injections in her scalp, but stopped those when the wig went on.  

She hasn't changed her diet either. 

She fully lost her eyebrows around March -- some of those came back blonde, then fell out again.  Now she's got a few dark hairs (just a few) and blonde.  

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Permalink Reply by jjacinta on July 2, 2015 at 8:52pm

Hello -  My daughter is 9 years old and had beautiful long black thick hair. Her hair seemed to define her even at that young age because that was all people could talk about how beautiful her hair was.  Well in February it started to fall out and now 99% is gone. Thankfully we have enough to make a pony tail and are using these lifesaver Ericka head wraps we found at Nordstrom.  Lots of stories to tell about our journey. But the main reason I wanted to get on here today was to say that things are turning around for us.  Insist that your doctor or dermatologist do a full blood test. It turns out that her vitamin d was deficient. When she was tested in March (after she had had some sun exposure) it was 13.9 (the norm is between 30 and 100).  We introduced multivitamins; d supplements; iron supplement; omega 3-6-9; changed her diet (as best as we could) - smoothie daily (with spinach or kale), healthier organic food. Making sure she's active daily.  I believe that this is what turn things around. At last check in June her vitamin d was 32. Check out Molly Vasquez book on Amazon. It's an easy read. The topical ointments, and shots may help - but they won't address the internal factor. You have to find the trigger and treat it.  The doctors would be more interested in the hair loss. But you should be the advocate for finding her trigger. I think we've found hers to be vitamin d. There are lots of articles about the correlation between AA and other autoimmune diseases and vitamin d. I hope this helps someone out there.  I am thankful to God in a way because if it wasn't for AA I may have missed her malnutrition and it could have been a worse diagnosis.  Because of our faith, and I believe the extra attention she's getting from us, she has coped unbelievably well.  I struggled but I think I am now over it. Maybe it's because I think I know her trigger and see growth and her hair is no longer falling. To answer your question, the doctors have told me it's normal for the hair to come back white but it will return to normal. We still have a lot of white hairs but some have turned black. She really doesn't have any more bald spots now it's all fine baby hair which may take a year to grow to the level where she can go without covering up.  I hope this helps. I am not good at checking the site but will try to check in in case you have questions.  Don't give up on researching on the internet.  It's been a lifesaver for me.  Thank God for it!  God bless you and I wish you the best.  At the end of the day they're beautiful with or without hair.

Permalink Reply by Momuv2 on August 25, 2015 at 10:10pm

My Vitamin D was at 14 and I am on Vitamin D3 50,000iu twice weekly.

I am sure hoping it helps me. My Dr. ran  A TON of labs.  I saw the 22 item list and wasn't sure I'd have blood left. 

All that was wrong was D3

Permalink Reply by jjacinta on August 31, 2016 at 3:25pm
Did it work for you? All of my daughter's hair is back.
Permalink Reply by Xeljanzmiracle on October 18, 2015 at 4:23am
I'm glad you found the trigger for your daughter.
Permalink Reply by tuesdayd on November 9, 2016 at 4:20pm

I wish I could give you hope, but nope! I get patches of regrowth in one place only to lose another chunk of hair from another. It has been like this since I was diagnosed 3 years ago. It will be like that forever.

Permalink Reply by AnnaRous on January 24, 2017 at 8:46pm

I had hair loss and growth off and on as a child, then a reliable head of hair from age 20 until 41. I always loved those blonde regrowth hairs and they were so much fun to see coming back again. It was always an indication of real regrowth for me, though how long that regrowth stayed was uncertain. I know that when I am enjoying my life and doing what I love, it doesn't really matter whether I have hair or not. I can say that as a 12 year old I had just lost my hair for the 2nd time, I didn't like it, but focused on the things in life I loved and tried not to let a lack of hair stop me from anything. 

Ann

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