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Permalink Reply by LIU CHUNXIU on January 31, 2017 at 6:16pm

i have the same problem vitiligo and aa. do u know more info about vitiligo? two patients for tofa and ruxo got improvement for their vitiligo.

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Permalink Reply by Patchesforlife on January 31, 2017 at 10:43pm

Thanks for sharing. How old are you? I'm sorry you ate going through this?

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Permalink Reply by Patchybutstrong33 on January 31, 2017 at 8:14pm

As of right now I was diagnosed about a year and a half ago. since then it all grew back and now I have another nickel size patch on the back of my head that I found I never lost all of my hair and every spot grew back from the time before so we'll see what happens this time

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Permalink Reply by Patchesforlife on January 31, 2017 at 10:49pm

Did you have alot of spots first time? How old are you m

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Permalink Reply by Patchybutstrong33 on February 1, 2017 at 3:28pm

I had tons the first time all in the back of my head one very small one in the front and was able to cover everything because I have tons of hair to begin with thank god. I lost from my occipital bone down all of the hair and within the next year it has all grown back I have a full head of hair I am blessed now just recently finding this one spot which is about a nickel sized I am 32 years old When this first happened I went through a terrible divorce it was the most stress I've ever been in my whole entire life and I've had two kids and it never happened before now this current time about seven weeks ago I went through a huge job change

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Permalink Reply by J_s_m on February 1, 2017 at 1:43am

I started loosing my hair when i was 11 or 12 cant remember exactly and i am 25 now, it took such a toll on me then and i kept pushing forward somehow. And to answer you, I havent lost all my hair. I would say i still have 15-20% of my hair on my scalp, i loose my eye brows at times and i do some medications and it grows back little by little but then i am too lazy about medications now as nothing really gives me what i want, that is all my hair. The hair that i have left grows normally, but the rest is always as clean as a slate. lol

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Permalink Reply by Patchesforlife on February 1, 2017 at 2:43am

Thanks for sharing.

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Permalink Reply by AlexaAA on February 1, 2017 at 3:08am

I had AA for about 2 years now. My spots grow back and then fall out again or grow back and falls from a different spot. I currently have 2 1 inch spots and they are getting bigger as we speak. Sad but true. Im hoping to go to the doctors tomorrow and see what can be done, since the first doctor i went to told me to "just stop stressing" thanks Doc. Helped a lot...not. Anyways just sharing :)

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Permalink Reply by Patchesforlife on February 1, 2017 at 4:35am

Thank you and wish you speedy recovery!]]

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Permalink Reply by Belladaball on February 3, 2017 at 1:58pm

I haven't lost it all...but it has been very progressive since I noticed my first bald spots on September 19, 2016.  Then I quickly noticed it was falling out and thinning profusely all over.........and in retrospect I realized it had been thinning all summer but it never dawned on me that I was actually losing my hair until I noticed the bald spots.

I'm a 50 year old woman.  As of today, about 4 1/2 months since noticing my bald spots (one above my left ear and one on the back of my head), I have lost 75-80% of my hair all over, have some un-coverable balding AREAS and am wearing a wig full time.  The good news is, the original bald spots have very thick growth (which is still very short) and I can feel re-growth on probably every single hair that I've lost!  They all fell out at such different times, and - of course - are growing back accordingly so the regrowth is not even.   I never thought I would be able to get used to wearing a wig, but I actually have - it's not a big deal at all to me anymore.

When talking to friends about it, I say that out of "5000" stories I've read, there are literally 5000 DIFFERENT stories, so it's literally impossible to know what will happen in the future.   I am thinking positive and anticipating the best outcome - regrowth with no recurrence!  I think I have lost a few eyebrow and eyelash hairs, because I see them on the sink, but so far nothing noticeable.

Dermatologist prescribed steroid cream, which I don't use.  I was lucky enough to be having regrowth even before I visited the doctor, and steroids scare me so I am leaving that alone and going with natural supplements.  My blood tested low on Vitamin D, so I take a multi-vitamin, an extra D3 supplement, 1500 mgs of turmeric (need to get the kind with black pepper infused so it absorbs properly) and 10,000 mg of biotin.  Not sure if it's helping my hair growth, but I had also stopped taking Wellbutrin once diagnosed with alopecia since anti-depressants were listed as a possible cause, and I'll tell you what - I feel better emotionally than I have on Wellbutrin for years.......I think it might be the turmeric.

So, no to the question - have not lost all of my hair, I've got "pattern baldness" but it's all coming back.   The supplements I am taking have greatly improved my mental health (the turmeric has also greatly reduced bloating around my midsection) so if they are not contributing to my hair growth as well, it's okay - I feel better and healthier than ever!

Good luck and blessings to you all!

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Permalink Reply by Patchesforlife on February 8, 2017 at 2:08pm

Thanks

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Permalink Reply by Suzie on March 7, 2017 at 1:02pm

Here's my story: First developed AA as a teenager with loss on just the back of my hair.  I was devastated because it thinned out so bad you could see the back of my neck.  My mother took me to our family doctor and he had no idea what it was.  It eventually all grew back on its own.  Fast forward to the age of 26 when I had my second child....I developed RA (Rheumatoid Arthritis).  It progressed so bad I was on several biologics (Enbrel, Humira and Orencia for the next 24 years.  After I was on the Orencia, I felt so good that I weened myself off of it.  Well.....I noticed about 6 months later bald patches.  My Rheumatologist said it was Alopecia Areata....what was that I wondered?  I googled it and I had my "aha" moment.  This is what I must have had when I was a teenager and it was dormant all of these years. I went back on Orencia thinking that would help but the AA just kept getting worse.  Desperate I spent lots of money at the Dermatologist getting steroid injections which helped with some of the patches but NOT with the shedding.  I asked my Rheumatologist about Xeljanz, which is suppose to help BOTH RA and AA patients.  So far after being on it for 4 months my patches are growing back.  Hair is still thin, but hopeful that will come back over time.

 I looked into wigs, hair pieces, etc.  Finally saw a specialist in Florida who is great and specializes in women only with hair loss issues.  After seeing her she said I was a candidate for glued in hair extensions.  I was worried these would damage my hair, but I decided to do it anyway.  I have had them taken out and put back in once and will have to do again in a few weeks.  It was pretty expensive, but so worth it for me.  I was stressing out over the hair loss which probably continued to MORE hair loss.  But it's so hard NOT to think about it.  All we alopecians want is to feel ourselves again.  For me, the extensions were the answer.  I am thankful for the hair I have and hope I do not lose any more. 

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