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Lyme?
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Permalink Reply by tryingtobestrong on
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How soon did your hair return after being treated for lyme? What method of treatment did you receive? Thanks for your response.
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Wow, my son was tested for lyme and the doctor advised that the infection was not active. However, he had 2 markers and some other indicative lab results that indicate he was probably infected. Unfortunately, his hair started falling out about a year and a half ago and we assumed it was just alopecia. I am hoping the antibiotics regrow his hair but he has had the disease so long, I am hoping this will calm his immune system. The first course of treatment is Doxycycline, which is the preferred antibiotic.
Claraful- can you please tell me how soon you got tested and treated for lyme after being bit.
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Claraful- you might want to take Doxycycline again if it worked before 5 years ago.
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My daughter just started last week on Doxy 100 mg/twice day, and will be on them for 6 weeks. Her joint pain has subsided, which has been pretty bad for the last 4 months. Also prescribed colloidal silver and mushrooms to modulate the immune system.
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They prescribed my son 75mg twice dag and will take them for 21 days. Is your daughter's infection active? Did they say this may help her alopecia or do they not know? I wondered if this will cure the AA once you get rid of the infection. Praying for your daughter and you to continue being strong.
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Her dermatologist prescribed prednisone back in October and her health plummeted. The prednisone allowed the lyme to go crazy, which we weren't aware of at the time. Joint pain, light sensitivity, extreme fatigue, etc. She was so sick all winter. Symptoms are lessening, thankfully. Her new doctor seems to think once her system is back to functioning well, then the Alopecia will subside. Is your son currently fighting lyme? Thank you for the kind words.
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Thanks for the heads up! I'm so glad to have joined this site. They wanted to give my son prednisone and I was holding onto it. He has markers that indicate he was infected at some point but it's not currently active. I believe it went un-diagnosed for at least a year and a half, which is when his hair started falling out. So now it only shows 2 markers and I think you have to have 5. There was another positive type reading for another lab showing his CD3+CD25 Lymphs was low and he has Vitamin D deficiency- which is all indicative of lyme. The nurse just told me yesterday to give him the doxycoline and the prednisone, so I'm so glad you confirmed what I had read that the pred will let the lyme flourish since it suppresses the immune system. We are going to start doxy today and continue probiotic/gut cleanser and I have to clean up his diet. His insulin growth factor was high but he had not fasted before tests. I'm praying that his alopecia universalis will subside as well. You are so welcome!!
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Oh wow, our children sound like they are going through something very similar. My daughter also had low Vitamin D according to her Dec. bloodwork, which we worked on over the winter and she is now at 70.5, YEAH! She only had one positive marker for lyme, but our ND is certain that she has it. As am I. We are also doing a powdered probiotic and another one to keep her gut healthy while taking the Doxy. I don't feel that my daughter's lyme became active again until after the prednisone. I believe she was infected in the late spring of her 2nd grade year, and by Aug/Sept she had her first spot. She went totalis, grew her hair back entirely and kept it for a year and is now nearly totalis again. She is now 11 years old. I firmly believe that "something" is not functioning correctly causing her immune system to go crazy. I am hoping that treating the lyme and any other underlying issues will cure her. I am obsessed with curing her and have found a doctor that is equally passionate about helping her. I am staying positive! So glad to meet you! Has your son been tested for co infections? Its disheartening that the nurse told you to take both!!! Bad idea! My daughter was sicker than I had ever saw her after the prednisone took her immune system down. Grew some hair about 1/2 inch only to fall within a weeks time of stopping.
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This is amazing- now that I have been reading, I have been jotting down co-infections to check for. His ALP level was high which coincides with vitamin D deficiency but I want to make sure he doesn't have any liver issues due to possible lyme infection. I wish I had a doctor as passionate, but his holistic doctor does seem to be but of course not covered. Which doesn't matter much right now, I will do whatever I can to keep him healthy. I was amazed when you said her hair actually grew back entirely! Do you recall what you did that she regained all her hair? I have twin boys and they are both 11. Chris started having AA and still has patches since he was 3, when his twin Caleb got this 8 years later, we just figured he had it too but AU b/c he lost all hair, eyebrows and no pubic or underarm hair. I know there is a gene in the family, their grandfather on dad's side told us both his brother's had it all their lives. One had AA and the other AT. I wonder if the lyme activated the predisposition. This gives me hope that once we get rid of the infection, lower his insulin, modify diet and get his gut/digestive system better, then his hair may grow back. The child with AA has patches and one of his patches recently spread a little. We do have a dog and I found out Caleb is allergic to dog, gluten, almond, peanuts, soybean and cashews! The pet dander cant' be helping. Sadly, I am looking for a new home for our dog. Also, what is ND ;)? Is that neurologist doctor.
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ND is naturopath. Her doctor is a MD but practices more natural health, does not accept insurance either. My daughters ALP's are elevated as well...have been since the alopecia started. No one would take my concern seriously. Last week her new doctor, did more in depth testing on her liver, so waiting to hear from that. I have read that the liver has something to do with alopecia, but can't remember specific reference. My daughter had many food allergies, including peanut, when she first got alopecia. We took her to a doctor who specializes in NAET, and cleared her of all the allergies. She goes back every summer to recheck and so far she has only has 2-3 pop back up and she treats for those. When the alopecia first started she had severe stomach aches almost daily, they stopped almost instantly after treatments. I know that sounds bazaar, and I tell that to very few people, since Some don't understand or believe in NAET. When her hair grew back, she has the NAET treatments, took Armour thyroid, Curcumin, probiotic, and we did DPCP. The DpCP was through her doc at Cleveland Clinic, but I did the treatments twice per week from home. Once we reached the dosage at which she reacted, she started growing hair that same month. She had hair almost a year when she had flu-like symptoms one day and the next day she had an eraser size spot and it all began again....her Doctor thinks puberty may have retriggered the alopecia.
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I see, so a ND is like a holistic alternative doctor. Our children are sounding more and more similar. I am taking him to his pediatrician on tomorrow to further investigate his high ALP. I read that this could be bone, liver disease, or due to the vitamin D deficiency. I also reach children's levels can be elevated as they grow. I am going to see if dr recommends a liver panel, which I hear you should do during and after doxy treatment b/c liver should be healthy. I am going to look up NAET, just read briefly after your post. My son used to have stomach aches and I have rushed him to the hospital thinking he had appendicitis. Thanks for sharing b/c I will look into the DpCP and the Armour thyroid and curcumin. Do you think along with puberty it may have also been the lyme? or did you say she got the lyme in 2nd grade...so good to chat with you.
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I think her initial trigger was lyme, we got things under control, and then puberty or a lyme flareup retriggered it again....
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