Hi everyone, this is my first post on Alopecia world.
I’ve had AU for 22 years, with regrowth happening sparsely all over my
body over the years. But essentially, still have AU.
Since the clinical trials here in minnesota started my mom
has been bugging me to get into a clinical trial. Only problem is, I definitely do NOT want to re-grow all of my hair only to have to lose it again because the trial ends. Which is what the U of M told me what would happen after the trial ends.
I’ve been reading all over reddit of people getting on oral jak inhibitors, regardless of the FDA status. I heard a rumor that “determatology specialists” in edina were prescribing them, so i set up an appointment only to be laughed out of the room by the doctor for even suggested that they might prescribe one.
Ug, so i’m back at square one. Can anyone help me out here in Minnesota to get on an affordable, insurance covered JAK inhibitor?
Thanks!
Sam Montgomery