Mother of 9 year old son with AA

My son has AA.  After getting his haircut, we discovered several patches on his head and eyebrow.  We immediately had cortisone injections, followed by daily application of Clobetasol Propionate (at home).  Eyebrow started to grow back, some hair noted in bald patches, but rest of head hair falling out.  Next month (last week) we tried Anthralin 1% creme to scalp, in attempt to create an allergic reaction to cease autoimmune reaction.  He immediately had a reaction to that creme, and with days his head was burning/tingling/sore/sensitive to touch/painful/lymph nodes in scalp swollen.  Advised to cease cream this week.  It's now 6 weeks after first discovery and he has lost hair on arms and legs and scalp hair continues to fall out.  I feel like I'm trying to beat the clock.  Might go back to cortisone shots next week once scalp heals (will be 100+ shots and will request some sort of sedative)  Any Advice??

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Permalink Reply by TeamRyan on April 26, 2014 at 6:34pm

Thanks Aimee.  We have tried Gluten free...which is more painful than shots!  LOL.  Seriously, we have eliminated gluten and are watching refined sugars.  After Anthralin, he asked for the shots back.  I can't imagine any great choices now, especially when kids can be inquisitive and blunt.  But, he is rocking the bandana like you....

Good luck to you on your journey!!

Permalink Reply by Pam on May 4, 2014 at 5:39pm

I would have him continue the Gluten free diet and be patient......I understand what you are saying, as I went through the same thing with my son.  The change in diet and taking supplements helped him immensely but it took time and patience, along with alot of support.  Good luck to you both.

Permalink Reply by Rose Marie' on April 29, 2014 at 5:57pm

Hi

This is a personal journey for you and your son. 

My daughter was diagnosed when she was 12 years old, she is now 23 years old and still has hairloss from her alopecia.  In that time we have never used medications or treatments for alopecia in particular.  She has regrown her hair without any outside intervention 5 times, but sadly lost her hair 6 times.  She is currently AU. 

I understand that some medications are able to hurry along the natural remission that often occurs with people who have alopecia, but at this time there is no cure.  I know that is a difficult thing to take on board, but be aware of this as you move along with your choices.  

Good luck with everything, if I can be of any support please feel free to message me.

Rosy

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