Replies to This Discussion

Permalink Reply by Sara on March 7, 2013 at 11:09am

Hi! My daughter was diagnosed when she was 3 and she is going to be 7 next month. We have only had spots that we were able to cover until a few months ago and within the last month she has lost all of her hair. It's not an easy process to watch but she has done really well with it. I took her to a child psychologist just to make sure she was ok and they said she is handling it remarkably well. We also have ordered a human hair wig that will be in next month. I"m frustrated with this whole thing...our dermatologist pretty much said there is nothing more he can do for us unless we want to do injections in the scalp which we are not ready to do. We are making an appt with an acupunturist to try some NAET treatments. At this point I just don't know where to turn.

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Permalink Reply by Jade on March 7, 2013 at 6:35pm

Thanks so much for answering I guess the hard part for me is the waiting and not knowing, she only has the one spot right now but we have just started I'm hoping for the best.But I know it can happen again at anytime I'm sure we will deal with it the best way we can its just so strange last month I have never heard of this and now its a big part of my life Thank you for telling me your experiences so far.

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Permalink Reply by Cindy on March 10, 2013 at 4:05pm

Sara, my 11 yr old daughter did the squaric acid treatments when she was 6 and still does it. She has regrown all her hair, but eyelashes. Google, SADBE for treatment info. You should also check out the childrens alopecia project. They could be a great support system for you and your daughter. There are support groups across the country now. I run the Massachusetts group. Best of luck, Cindy

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Permalink Reply by MaddiiBoo on March 14, 2013 at 11:18pm

How long did it take for her to regrow her hair?

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Permalink Reply by Cindy on March 10, 2013 at 4:10pm

Hi Jade, please know that your daughter is heathly and this is the most important thing to remember. I am sorry you and your family are dealing with this. Alopecia is unpredictable and there is no cure. I hope you can find a support group in your area to help you support your child and for your child to know she is not alone. Your feeling are norma, but you will find away to deal with this. Please let your daughter know she will be okay and she is beautiful. We have to remember our kids have to learn how to cope with alopecia and live with it. Best, Cindy

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Permalink Reply by Rose Marie' on March 11, 2013 at 12:08am

Hi Jade

That feeling of helplessness is the worst feeling of all. It can become very overwhelming. Take a step back for a moment and know that you already doing what you need to do to help your daughter. You are here educating yourself on options that are available to support her through hairloss problems that may occur in the coming years. At this time nobody can tell you what is going to happen and that is the worst of it. You don't have any control over alopecia areata. It does what it does.

My daughter lost her hair when she was 12 years old - she is now 22 years old. It has been quite a journey (one that I really would have preferred not to be on). But my daughter was diagnosed with alopecia and here we are.

May I add my daughter is well adjusted and has just begun her first year of teaching. She has a Science Degree, plays the piano, sings in front of people and generally lives her life with all the gusto and joy that anybody else has.

In the last 10 years my daughter has had bouts of extreme hairloss and differing degrees of regrowth (between 70% and 95%). This cycle has happened six times with no reason for the constant loss and gain. I have never used medications or treatments and her hair has done what it does anyway. Alopecia can go into remission without any medical intervention. There are people that have one small spot of alopecia and then full regrowth never to have it again. There are also people like my daughter and people that have absolutely no regrowth from the time they loose there hair.

I think it is best to live in the now. At this time your wee girl has one small spot. If it is to get worse then start investigating what you may like to do around that. How you will talk to her and make her and you comfortable with what ever situation arises.

I know without a doubt that you will find your way and so will your daughter. Just keep educating yourself and find the things that help you and her.

Take care

Rosy

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Permalink Reply by Alliegator on March 11, 2013 at 3:34pm

Hi Jade,
I wanted to tell you hi and welcome. I have AGA, not AA, so it is different, but I do understand how difficult it is to have Alopecia. I wanted to say that you and your daughter are in my thoughts. I wanted to tell you that you are not alone. You came to the right place. There are many mothers on here with children who have AA. It may not seem like it now, but your daughter will learn how to deal with it. Just be there for her, and when she gets older ask what she wants to do or help her find it. It will be a journey for her, but there will be people to help. She can find a place of acceptance. Also, there will be many options for her so she can find something that she likes best. Hugs! We are here for you.

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Permalink Reply by Jade on March 11, 2013 at 4:07pm

I want to thank everyone for commenting it does make me feel better to know were not alone and I am hoping for the best but its nice to know if I need help or suggestions I can just ask all of you. We go back to the doc tomorrow to go over treatments whether to try something or wait and see what happens from what I have read it really makes no differance it will not stop the outcome is this correct? Should I wait awhile and see if it corrects itself or should I try something right away. Any Suggestions?

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Permalink Reply by Rose Marie' on March 11, 2013 at 5:36pm

Hi Jade

In my experience Alopecia does what alopecia does. Some people feel very strongly about medications and treatments, but for me personally it wasn't what I wanted to do. I felt my daughter was dealing with enough without putting her through constant doctors appointments and discomfort for the possibility of regrowth...when there are absolutely no guarantees it will work.

As I said above my daughter's hair comes and goes of it's own accord, without any type of medical intervention.

If you do decide on medications, do your research as some do have some horrible side effects.

Your not alone and no matter what you choose you will always have support here.

Rosy

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Permalink Reply by MychildhasAT on March 15, 2013 at 2:19am

Hi Jade,
My daughter was diagnosed with AT at age 2 then lost her hair and eyebrow within months time, she is turning 3 next month, still no hair and eyebrow, her derma gave her floucinolone but i didnt apply it as instructed bcz of d steroids and i feel it made her hairloss worst!! I just recently started rubbing fresh aloe vera on her scalp n eyebrow with the hopes of re growth.. I understand how u feel and lets just all hope for the best with their journey..

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Permalink Reply by George Ortiz on March 16, 2013 at 10:05am

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and also check out the Marshall protocol websites google Dr.Trevor Marshall or google the marshall protocol. I hope this information consoles every one who reads it in some way.
If you believe in this movement please let the word out contact your primary care physicians and inform them of this breakthrough information give them the websites so they can read the published articles and read about the current conferences and currently ongoing human trials in effect. i hope this helps you make a cauitios quality choice.

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Permalink Reply by Jade on March 17, 2013 at 8:51am

Hi everyone well abit of an update its been about 5 weeks and my daughters spot is still getting bigger and seems to be fast one day I'm fine the next day I'm scared and crying I just hate that I can't do anything another doctor gave me a steroid cream and I got scared seeing it get bigger and put it on this morning which now I regret I just don't know what to do I only hope I get alot stronger for this whole process.Deep down I thought this would of all stopped by now its just been such a rollercoaster ride and its just the beginning so I'm nervous about trying not to let her see me upset but I know she can tell something is wrong and I hate that anyway I hope its gets better.

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