Alopecia World
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Permalink Reply by Rose Marie' on
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Hi
I suppose this depends on how you define success. There are many people here that have been successful in finding solutions for themselves around the choices that alopecia gives you.
Mary has a great attitude and prefers to present herself without hair. Cheryl is the same - she is the founder of Alopecia World.
I would consider my daughter a success, she prefers to present herself with a hairpiece.
If I've got the wrong end of the stick and you are wanting to know of people that have grown hair back and it has stayed...I'm afraid they are few and far between. Some people do have this result but normally when this happens they would not be on this site any longer. :)
Rosy.
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Permalink Reply by Me&myGirl_Aussie on
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I believe success is in the acceptance, and making the most of what you have in life, not worrying what others think and haveing a good friends to support you..... as Rose said I myself have been told about all these creams etc....tried a few........ and I am not interested in the ups and downs of the maybes and possibilities, I have not heard of a lot of success in hair growing back with all these medical products.... the success cases (if hair growing back is what you are refering to) is the ones that have grown back on their own.
My success involves wearing a custom vacume wig, having had my eybrows tattoed, finding some awesome eyelashes on Ebay, and living with confidence and positivity.... I am also teaching my daughter the same who is 8 and just lost all her hair a couple of months ago.... her custom made wig is being made as I write, and she can't wait, she talks about all her experiences at school in her show and tell time....wears different coloured sinthetic wigs to school and asks their opinion on colours in the same show and tell time. She has a postive outlook and its fantastic to see, her little friends are great... she is still playing her sports and dancing and we use a head band to hold the sinthetic wigs on.... which will not be an issue when she has her custom vacume wig. Her words, "we are special mum - together!!!"
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Hi Corrine,
I guess my story would be considered a success. After having AA for almost a decade now, I have a full head of hair. There were times when I lost my eyebrows, eyelashes, had well over 20 spots ranging in size from a dime to larger than a golfball. I tried everything, the shots, creams, etc., and what I ultimately realized is that my alopecia is linked to food sensitivities. True story.I'd had all of the tests: hormones, thyroid, blood levels, vitamin levels, auto immune marker - you name it and everything came back in the normal range. Twice over the last decades I have experienced a full regrowth. Both of these were when I eliminated foods. The first time around I eliminated: wheat, rice, potatoes, dairy, caffeine, and sugar. I had full regrowth within 6 months. I kept up with this diet for about a year and eventually slipped back into my old ways. After this I struggled with varying degrees of alopecia for years!
Last year I began to go to a dr's office that combines Western and Eastern medicine. I wanted to heal from the inside out vs. outside in. They gave me a food sensitivity test, where they took multiple vials of blood and tested them against numerous foods. The lab that does these tests is called: Genova Diagnostics, 1-800-522-4762 or check them out at www.gdx.net. From this test I found that I was sensitive to a number of foods: coffee, wheat, gluten, tomatoes, mushrooms, cane sugar, watermelon - the list goes on. I immediately eliminated all of these foods and my hair has since completely regrown. I faltered briefly and went overboard on sugar, and two little spots appeared. I eliminated sugar again, visited my dermotologists office for a steroid shot "boost" and they grew in in less than three months.
I was also found to be deficient in both biotin and vitamin d3. When I researched biotin deficiency the first listed symptom was alopecia. I also take vitamin C with MSM and sublingual vitamin b complex.
In my experience, eliminating these foods and using supplements has worked for me. My aplopecia began with a very stressful pregnancy, and both my mother and great grandmother had AA. I have found after extensive testing what I believe is causing mine, despite all of my doctors scoffing at this. I can't say that it will work for everyone, but that's my success story.
Thanks!
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Hi - love your story, I have just started reading a book on auto immune problems being cause by what we put in our body. It is a real eye opener. Thank you for sharing your sucess. I feel successful with my life... and feel its too late to correct my inner body after having alopecia totalis-universalis for 26 years, but I am opening my eyes for my daughter :)
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Oops - I was wrong, Genova Diagnostics did a different test where I found out about my biotin deficiency. If you're interested in the food sensitivity go to www.foodallergy.com and the company is Alletess. Sorry!
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Permalink Reply by Corrine on
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Wow ....thank you Ladies!!!! You have given me so much information . I really appreciate all your responses. I am
Definitely going to check out the food test. I am eating healthy and working out as my form of medication . The endorphins released from that are amazing.
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I have an appointment on the 15th with a Naturalist. I am so pumped!! I am wondering if anyone else was able go book an appointment ?? Why not eh?? Worth the shot.
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Good to hear! Such a different approach. My doc once told me that your skin is the largest organ on your body and will be one of the first places to indicate an issue. Hope this is helpful for you!
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