Newly diagnosed last week with TE and a form of alopecia that I can't remember what sort :-(

Hey guys 

I am Vicky 36, UK not sure how long I have been loosing my hair but I noticed it about Feb feeling thinner and breaking.  I have a whole string of health complaints and an not sure if its all being caused by stress, medication or what.  I saw a GP over a month ago now who did a blood test and showed my folic was slightly low and my ferritin very low at about 9 but they said it is likely to be less as I am already one ferrous fumerate orally twice a day and also had not done the test fasting.   It's been around this level for over 2 years but my GP had not done a follow up blood since putting me on the tablets and I had just continued taking assuming they were raising but they were not.  It's clear I have some sort of digestive disorder as I already suffer gastric reflux and IBS.  

The doctors just suggested I continued my iron, I saw a trichologist privately last week who diagnosed the TE and the alopecia but I was so shocked what he was saying half of the appt went in one ear and out the other.  He sold me a bottle of minoxidil but I later read online that it can cause more loss and if I start it anything grown will just fall out once stopped so really I am more trying to find answers as to why its falling out if we can.  He suggested an iron infusion but as of yet the hospital has refused it and I am trying to see if there is anyway to get private.  

I am suffering what many of you most probs have with the mental side looking in the mirror is breaking my heart.  Cried myself to sleep for 3 nights now, my hair is long but as its breaking so bad its needing cutting.  

I am very unsure what to do to be honest, when I saw the trichologist he said that the bits that were short were re growth but the following day I noticed when I was moving some hair out of the way it was splitting off and breaking.  I showed my mum and she 100% agreed with me it is splitting/breaking so as you can understand I am now concerned to continue treatment with him, it has left me doubting him.  

I have been ill for 3 years now since an accident, I had an injury then got poorly with Fibro and CFS and its just gone on from there.  The hair could also be stress as the accident took my health, my job, my flat and my independence then last year I lost one of my best friends to cancer followed by my Grandma a month later to a heart attack as I sat there with her.  I think this is just the final straw feeling so depressed about it.  Feel as if my last bit of health has gone, sounds daft but while my hair looked nice I was still able to put on make up and pain killers and now and again feel slightly like I was the old me.  This has just pushed me over now so low.  

How does everyone cope?  Would just love to talk to others feel very isolated.  

xxx

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