I have recently been diagnosed with FFA and as you can all imagine, have been pretty distressed. I first noticed it with my eyebrows, but when I finally went to the dermatologist to see what was going on, she pointed out that I was losing hair at my scalp line and presented me with this scary diagnosis. Before agreeing to take Paquenil, I decided to self-medicate with turmeric capsules (powerful anti-inflammatory) and noticed that the inflammation went down, which is a good sign. I have since gone on Paquenil, but am not sure what it's doing besides giving me nightmares.

Yesterday, I went to a nutritionist/acupuncturist for the first time to see if I can get at the root of what is causing this condition, which traditional doctors seem to be almost completely clueless about, aside from suspecting that it is an autoimmune response. In any case, the acupuncturist is sure it's an autoimmune condition and has pointed out my diet issues which could be causing my immune system to go haywire. She has increased the amount of Vitamin D I should take and has also put me on a gluten-free diet. So we'll see what happens with that. Oh, and she stuck a bunch of needles in me. I slept through the night for the first time in months following that needle session and don't remember having had any nightmares. Curious. She also told me that my self-medication with turmeric capsules was absolutely the right thing to do and I do believe it has helped control the inflammation.