Off Label Use of Oral Jak Inhibitor Cost

3 commercial oral drugs exist -to grow hair in 50-75% of AA patients none approved for AA therefore “Off Label” use is needed:

2 Approved by FDA

  1. Xeljanz-considered a pan jak 3-Tofacitinib 
  2. Jakafi-   Jak 1/2 inhibitor -          Ruxolitinib 

1 Approved in Europe

  1. Olumiant-Jak 1-                          Baricitinib - resubmitted to FDA for RA

Those individuals taking these drugs please share:

1. Is your health insurance drug plan covering, if so how much is the cost

2. If paying out of pocket how much are you paying and how do you obtain 

3. How long have you been taking, have you started grown hair, stopped lost hair , started again etc.

Fyi

To the best of my knowledge:

there are 4 drugs in clinical trials:

Aclaris Therapeutics-Ati 502-topical- Jak 1/3 selective-

                                  Ati 501-Oral   - Jak 1/3  selective- 

Concert Parm -         CTP-543-Oral- Deuterated Ruxolitinib- Granted Fast Track 

Bristol Myers -           Abatacept-?

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Replies to This Discussion

Permalink Reply by Hope4mySON on May 14, 2018 at 11:22am

Sabine I one hundred percent agree with you.  

Permalink Reply by Drea on October 11, 2018 at 1:41am

Hi has there been any updates on your use of the cream

Permalink Reply by Hope4mySON on October 11, 2018 at 10:14am

we used it again and the hair grew back but once it gets substantial regrowth it falls off again bc its difficult to apply the cream. I can get the hair to grow back with the cream but i cannot get it to stay

Permalink Reply by Maris on February 10, 2019 at 10:17am

As for plastic surgery, there're only Canadian clinics to consider. Just check the list of clinics PlasticSpot.io. Hope it helps.

Permalink Reply by desperatedanyell on February 10, 2019 at 11:58am

Hi. Can you tell me whether the Tofacitinib cream is available to buy and where from please. 

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