Overload

Hi...really struggling here with a load of health issues and terrible hairloss. I spend most of my searching for a solution. Yet, I keep coming up empty handed and confused. Every choice I decide on seems to have a reason that I can't forth with it. Every place that I find that sounds hopeful, I find tons of negatives about it. I still have hair. Hair that falls out in clumps BUT I am not ready to shave it off. I have hair OCD..I have always worried about it and it has made me sick. I have wasted so much money and don't want to waste anymore. I tried a Flora and then when I had problems, I couldn't get her to call me back (her husband said she was sick, but others have told me they have talked to her), I have researched Freedom Wigs, but can't shave my head yet, I can't bond because I am super sensitive to everything, when I wear clips my already painful scalp is unbearable. I have spent the day researching the Wiggin Out salon and talking to a rep then to find tons of complaints on the internet. My health is deteriating, my nerves are shot, and I am feeling even more hopeless. It seems there's no answer...I had to go to the ER last night due to severe headaches and panic..MY AS is flared..My nerves are shot...I am isolating myself because I feel like I can't relate to anyone....I simply don't know what to do at this point....

Views: 686

▶ Reply to This

Replies to This Discussion

Permalink Reply by Ciella on January 10, 2013 at 9:34am

I came across your profile and don't know if you ever found a suitable wig...I wanted to mention FOLLEA wigs...they are incredibly natural and SO BEAUTIFUL. I am not wearing mine in my profile pic (I need to update it)... but they are truly beautiful. The quality of the hair and cap is truly exceptional...and so is the way the hair moves and falls. A lot of us wear FOLLEA and you can see more images at http://community.womenshairlossproject.com.
If you ever join, look for me there too.
You can also go to the FOLLEA website at http://www.follea.com to see their wigs. I too went thru a lot of trial and error until I found their wigs...and am SO HAPPY with it:)

Other than that, perhaps you have already found a wig....I hope you have and that it all is well now...the search can be difficult I know! :)

God bless!

Permalink Reply by 3monkeys&me on November 17, 2017 at 7:28pm
Hi, I came across your story while doing a Google search for ankolosing spondilytis and hair loss. So much of your story sounds so familiar: chronic hair shed, painful sensitive scalp, psoriasis. I have not been diagnosed with an autoimmune condition yet but my thyroid has always been suspect (i have nodules with calcifications) and I have a neck and back muscles that tighten up and become painful and almost immobile (neck especially). How are you doing? Have you discovered anything that has helped in your hair loss and/or head pain? I have felt very alone in this journey as i have not found snyone else with these sumptoms and my doctors have no idea how to help me.

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service