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Plaquenil
I was diagnosed with AA 4months ago but my derm said I have had it for sometime. She placed me on plaquenil 200mg twice a day. My hair loss has stopped and I was wondering did much of your hair come back and how long did it take. She also placed me on Rogain. All my blood tests are fine including ANF and ENF.
Trish
Replies to This Discussion
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Permalink Reply by Merry on
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I tried Plaquenil for about 6 months, but I didn't have any results. I have AU,and I have heard that it has helped some people with AA. Good luck! At least, I didn't have any negative side effects
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I've been on Plaquenil for three months now. First month my Derm put me on 200mg a day (the pharmacy had to give me a pill cutter as they only had 200mg tablets...what a pain!). After 30 days she increased my dosage to 200mg twice a day (at least I've got a pill cutter should ever the need arise!!). I'm also on Minoxidil (i.e. Rogain) but that was on the advice of my Trichologist. I use this twice a day. Still use Synalar Gel too (really this is just to counteract any itching that sometimes occurs). I go back to the hospital at the end of this month. Am I still losing hair? Yes. The Trichologist recommended Minoxidil simply to help the hair that I have to become stronger and therefore, hopefully, withstand the onslaught of FFA which is permanent hair loss. When I first went to the hospital to start the diagnosis process and told the Derm Consultant I might try this she just laughed it off. However, I went ahead after doing more research and when I went back for my first visit after diagnosis was confirmed I was fully intending to ask for a referral elsewhere. However, I saw one of her team who was much more open minded and who was only concerned over the financial longterm implication it would have on me. When I went back a month later and saw her again I was encouraged that she had done some research and agreed that it was worthwhile to continue to use it. I've had no negative side effects although the hospital did tell me to have yearly eye tests due to taking Plaquenil.
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Thanks so much for all the detail---you and I are on the same road---so I would like to give you my e-mail address---rutledge117@hotmail,com---so we can exchange notes,
Again thanks trish
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Patricia, I've been on Plaquenil for 2 yrs now. My hair loss was first due to skin lupus (dx from biopsy). When shots didn't work he moved me to Plaquenil. The Plaquenil does seem to keep the Lupus at bay but hasen't helped with the AA. He did request that I have an eye exam prior to starting Plaquenil and then repeat exam every six months. So far so good.
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Hi Thanks for your reply---I haven't had my biopsy yet but have started on the plaquenil----when you say it hasn't helped your AA what do you mean ---have you lost all your hair??Do you
mind me asking how old you are?
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Patricia, the biopsy showed I had skin lupus. I was given Plaquenil for the lupus which is usually the "drug of choice" for that disease. With skin lupus you can get dark red spots (have been referred to as lesions) on the body. Mine seemed to come on my head. With lupus you get scarring and I was told hair would never grow back. From lupus I ended up with five (quarter size) bald spots. The AA started in different areas. I've lost approx. 60% of my hair so I had it cut off last week. It is about 2" all over but I don't have the depressing moments of seeing long hair all over our bathroom and on my pillow. I had purchased a good synthetic wig and have also bought a lot of scarves and caps. Last week I ordered a Follea HH. I don't like to discuss age because I quit thinking about that. I do have grown children. I am fortunate as I don't have to worry about wearing a wig to work daily as I just work with horses and a scarf or ball hat is fine with them. If you figure out what causes the discomfort please let me know. I've gone to numerous doctors and they seem to ignore the question.
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