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Probability of AA
I have a 4 year old son (only child) who was diagnosed with AA at 2 yrs old. We began a steroid regiment as soon as we could. Unfortunately, my son had a rare (and dangerous) reaction to the steroids and we had to discontinue use. Over the course of this entire journey, I racked my brain to try to figure out where the AA came from (why it happened to my son). It took a while to think of it, but I have a cousin on my father's side who, at 21, started losing hair in patches. She refused to go to the dr, but looking back I recogize it was AA. This broke my heart, as I realize that it was my genes that caused this disease in my son. My husband wants another child, but I am scared of passing on that gene to the next baby. Does anyone know the probability of having 2 children (not twins) with this disease? Does anyone have a first child with AA, but other children without it?
Replies to This Discussion
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Permalink Reply by melkat09 on
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Now, my husband is not the biological father of my son (I had a previous marriage), but since I believe the AA came from my gene pool, I am concerned.
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"wise 1": you are right...perhaps you should keep your opinions to yourself. I did not ask for opinions on what my feelings should be, but if anyone knows the probability of passing on the gene more than once. Just because I ask a question on this site does not mean I am giving every detail of my life or of this journey. It is, quite frankly, none of your business. If you do not know the probability, oh wise 1, you should have just kept scrolling.
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Permalink Reply by wise1 on
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Research/ read and you will find no conclusive predictor of passing AA along to your children. No guarantees...
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Don't want to offend you as I don't really KNOW, but I have twins with AA and there are no family members on either side with it. There was an auto-immune disorder on my husbands side-his Dad had Myasthenia gravis. We always assumed our sons AA, which showed up after their 9 month vaccinations was "triggered" at that time as a manifestation of an underlying auto immune genetic pre-disposition. I guess my point is that I don't think AA is destined to occur, even IF your new child had a pre-disposition IF the trigger doesn't happen. I know, in my case, I would have delayed vaccs with another child especially since the Hep B vaccine package info lists AA as a side effect and after I read a study that said "the vaccine may initiate disease in mice predisposed to AA". But my opinion is that there are different triggers for different people so if I were you I'd be interested in WHAT your son's trigger was if you can and if it's something you can control for you may have luck in avoiding it being triggered in another child if such a predisposition WERE present which it may very well NOT be.
It's been many moons since I've gone to any mtgs or anything (twins are 15 now) but I recall many people with more than one child but who only had one with AA-not very scientific I know!
All of this is obviously, my opinion only!
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