Alopecia World
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Progress?
Hello all!
I just wanted to give an update on my current situation and ask for some advice.
As for my background info, I was AA for about 5 years and became AU exactly 2 years ago. Dermatologists rejected me saying there was nothing that could be done for me without severe side effects, even though i complained about other symptoms i had (digestive probs, extremely tired, cold). I went to an endocrinologist and demanded to be tested for Celiac, and it came back negative. I was so frustrated bc my body just did not feel like it was in tune. After a year, i finally became more comfortable being bald, but i felt there was some other underlying issue i needed to figure out.
I finally went to a holistic doctor, who upon arrival, immediately told me that if i came for a cure i came to the wrong place...BUT if i came to make myself whole i came to the right place. Sounded good to me! I was tested for everything. My results showed that I had Hashimotos and low levels of DHEA-S and vitamin D. He put me on many supplements including fish oil, daily vitamins, vitamin d, thyroid hormone, and DHEA. After a few months I definitely felt more like myself, and after a few more months I decided to change my diet to help my digestive probs. I removed dairy, gluten, and processed soy (i don't eat much meat) from my diet and focused more on raw foods and included brown rice and beans in meals. Within another month, I found small white hairs on my armpit and i was shocked!
So here it is 6 months later. I tend not to stick to my diet for special occasions (vacation, thankgsiving, xmas) but i've made the effort to eat better. Overall my digestive issues are better...except i think i'm having gall bladder issues (i've had 3 attacks in the last 2 months). As for hair, i have small white fuzz on about half of my head with a patch on my right side slightly longer. My eyelashes and eyebrows are starting to have pigmented hair grow in through the white hairs, and my eyelashes are long enough to start wearing mascara again. I also have white armpit hairs and white pubic hairs as well as a little on my arms. There are a few thick dark hairs finally growing in those places too (the last places i'd prefer them to grow, ha!).
I'm thinking about going back to my dermatologist and either saying "ha! you were wrong!" or "ok, so what can i do to help these hairs out?"
Has anyone had this type of regrowth with AU? Any suggestions on what can help with the regrowth? Honestly with AU, I can't say if it was the meds, the diet or just my body that made these little hairs finally grow, but i don't plan on changing much.
I just wanted to give an update on my current situation and ask for some advice.
As for my background info, I was AA for about 5 years and became AU exactly 2 years ago. Dermatologists rejected me saying there was nothing that could be done for me without severe side effects, even though i complained about other symptoms i had (digestive probs, extremely tired, cold). I went to an endocrinologist and demanded to be tested for Celiac, and it came back negative. I was so frustrated bc my body just did not feel like it was in tune. After a year, i finally became more comfortable being bald, but i felt there was some other underlying issue i needed to figure out.
I finally went to a holistic doctor, who upon arrival, immediately told me that if i came for a cure i came to the wrong place...BUT if i came to make myself whole i came to the right place. Sounded good to me! I was tested for everything. My results showed that I had Hashimotos and low levels of DHEA-S and vitamin D. He put me on many supplements including fish oil, daily vitamins, vitamin d, thyroid hormone, and DHEA. After a few months I definitely felt more like myself, and after a few more months I decided to change my diet to help my digestive probs. I removed dairy, gluten, and processed soy (i don't eat much meat) from my diet and focused more on raw foods and included brown rice and beans in meals. Within another month, I found small white hairs on my armpit and i was shocked!
So here it is 6 months later. I tend not to stick to my diet for special occasions (vacation, thankgsiving, xmas) but i've made the effort to eat better. Overall my digestive issues are better...except i think i'm having gall bladder issues (i've had 3 attacks in the last 2 months). As for hair, i have small white fuzz on about half of my head with a patch on my right side slightly longer. My eyelashes and eyebrows are starting to have pigmented hair grow in through the white hairs, and my eyelashes are long enough to start wearing mascara again. I also have white armpit hairs and white pubic hairs as well as a little on my arms. There are a few thick dark hairs finally growing in those places too (the last places i'd prefer them to grow, ha!).
I'm thinking about going back to my dermatologist and either saying "ha! you were wrong!" or "ok, so what can i do to help these hairs out?"
Has anyone had this type of regrowth with AU? Any suggestions on what can help with the regrowth? Honestly with AU, I can't say if it was the meds, the diet or just my body that made these little hairs finally grow, but i don't plan on changing much.
Replies to This Discussion
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Permalink Reply by Angie on
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Wow! that is so wonderful. I don't have any suggestions on whatmight help with the regrowth, but I don't think you should tell the dermatologist he was wrong, because they do the best they can. They only have little knowledge and God knows it all. So just maybe he was right and God changed it around. God can do that, he can make the impossable possable.Good luck and I pray you will continue to heal. Try not to worry, b/c that can make the conditon worst.
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Permalink Reply by santinito on
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Hello .. my name is cintia, my son has alopecia areta from almost three years .comenzo with areata at the age of 2 and I happen, then I recover all his hair in a few months .al time it had total alopecia. Now he is 4 years old and a half and 4 months ago this one with a natural diet. Only it can consume integral flour, haceite degirasol of first pressed, nothing of lacteal and .solo takes almost the half of his recovered hair I speak Spanish and communicate with the translator .me gustaria to communicate with you yaa that to both I us benefit this type of diet. Waiting for response.
I leave my e-mail.
Pipichon160606@hotmail.com
A lot of luck and let's wait soon one is he recovers .. regards cintia.bs seize Argentine
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Hi Cintia, glad your here. I'm trying to do a natural diet also. I called my doctor who will mail me some information. I will visit her in Feb, I will keep you posted. Please us posted on how your son is doing.
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Permalink Reply by Amy on
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It's a mystery. I have had AU for 18 months, AA for 20 years, and I have very similar regrowth right now. White fuzzies everwhere and pigmented lashes (lowers anyways, few spots of uppers). Sometimes people cycle in and out of this- I've heard of other regrowing. I'm trying not to get attached because easy come, easy go until they find a real cure for this. But good luck to you, maybe your imbalances being fixed can resolve things. As for me, I havent done anything differently. It just started growing for no apparent reason. Madness! :-)
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Madness is right! Well I hope the morning come and for no apparent reason Amy's hair grew.
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Hey Vin,
All I have to say is beer is fatting, good for you! They say red wine is good for you.
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Permalink Reply by Jen Lowe on
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thanks Vin!!! i do feel way better after eliminating gluten and dairy...but i understand the holiday temptations :)
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Jen
My son has AU, we tried steroid shots and cream but didn't work. We then took him to a nutritionist he quickly but him on a supplement called moducare,fish oil and a thyroid hormone and in 6 months time his hair has started to grow back. He is at about 50% regrowth on head and has got 50% eyebrows back no eyelashes. We keep on seeing more tiny white hairs coming in.
So what every your doing is int he right directions.
AL
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I haven't replied to this for awhile but here's some updated info
http://cleanrawliving.blogspot.com/2013/09/more-about-jen-alopecia....
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Hi Jen. I read your blog and it's so interesting! I truly believe the food we eat and the gut has a connection to alopecia. I'd love to know more about your diet. I'm currently gluten free but I'm going to cut out soy and dairy too and all processed foods.
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Thanks for checking it out! It's definitely an experiment with myself. I notice that my body as a whole does better when I watch what I eat. Good luck, and let me know how it goes!
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