Alopecia World
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Reaching out
Hi everyone, My name is Janitha and I have had Alopecia since the age of 3 and I am currently 26. I am completely bald and have never taken any treatments nor do I wear wigs. For the majority of my childhood I honestly thought I was alone and once I figured out that I wasn't I honestly was so use to dealing with it on my own that I didn't look for any support. I have avoided messages boards and support groups cause the few times I skimmed the boards I became depressed. Reading the comments was like looking in the mirror cause they spoke out loud some of the very issues I had to deal with. I'm tired of running and avoiding it, I hope I am able to finally meet some amazing people that are just like me and build some relationships. :)
Replies to This Discussion
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Permalink Reply by Bonnie on
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I'm pretty sure I had alopecia my whole life, too, I just didn't know it. My nails always had deep ridges in them and had to be cut short or they would break. My hair was always thin and frizzy as a child, and whenever my little sister got mad at me, she would yank it out by the handfuls, but it never hurt. It started coming out when I was 30, and by the time I was 35, it progressed to total hair loss. I didn't know anyone with alopecia at the time. I, too, felt alone and rather freakish. A co-worker lost her hair to chemo and reached out to me and guided me through the wig process. It was a step in my coping journey. I've since discovered I'm not alone. In fact, I'm with 2% of the world's population on this journey. That helps so much. Fortunately, I'm at the acceptance phase of the game. I'm totally bald and only cover my head for temperature/climate control. I go everywhere bald and make no apologies or excuses now. Although I love to explain when people ask. But there are still days when I look in the mirror and think "If only...". You have come to the right place, and I'm sure you will find some great friends here.
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Permalink Reply by Bravadas Wigs & Extensions on
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Wow, what strength. Hi my name is Dana and I manage Bravadas wigs & Extensions and from working with women daily dealing with hair loss like yourself I see it is not always any easy thing to deal with. I hope thru this sight you can build the friendships you are looking for. And if you meet enough in the Dallas area give me a call sometime and I would love to do a special event in the salon and provide a safe place to meet and who knows maybe start a support group.
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