Reaching out

I was diagnosed with discoid skin lupus in 2002. Apparently, most of my attacks happens on my scalp, causing me quite a bit of hair loss. I used to get 12 steroid shots in my scalp until I couldn't take it anymore. I'm so paranoid that it's too close to my brain and I stopped the shots, it did control the outbreaks for a while, however I may try a topical steroid, which I was told you must keep using it constantly. If you have any suggestions on how to prevent the hair loss, I would love to hear them. Again, Thank You for your support.
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Permalink Reply by Angie on February 15, 2011 at 9:16am
Hi Jeanette,

I was diagnosed with AA about seven months ago. I did the shots in my scalp along with rogaine; I'm not sure helped.But I know how to shave now, LOL. I know my scalp sanked in some, so derm said not more shots, she said it could make it worst. I went to my family doctor two weeks ago and she said" you need to talkp B complex, evening primrose oil and fish oil. Well Jeanette, I have to say my hair is growing. research and most all talk to your doctor about taking these suppelments.
Let me know and I your added to my prey list.
Permalink Reply by Jeanette Williams on February 15, 2011 at 7:25pm
Thanks Angie for the information, however should you take the B complex by moouth or is this a solution that you mix with the primrose oil and the fish oil?
Permalink Reply by Angie on February 16, 2011 at 3:38pm
Each pill by mouth.
Permalink Reply by Monica LUPUS MATTERS Ellis on February 24, 2011 at 8:30pm
Hello Jeanette,I was diagnosed with DLE & SLE in 2000 and my hair has completely fallen out. I decided to shave my hair in 2009 and when i want hair i just make a quickweave.I sorry that u had to go thru all of this and i pray that it is under control now,take care:):)

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