Replies to This Discussion

Permalink Reply by Jason on November 6, 2013 at 9:45am

Hi Lisa,

What tests did your daughter run? What supplements has she been taking? What does she eat on a daily basis? Just  curious to know more, thanks for your post.

jason 

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Permalink Reply by Lisav on November 13, 2013 at 4:20pm

Hi Jason,

My daughter was first tested using bio meridian testing to ascertain her toxic level, digestive and immune system, organ pressure and food intolerances. She was later tested using functional biochemistry, which is how they found the parasite. For both tests you need to have an open mind. There are times when I find myself being very sceptical and I have moments of self doubt as to whether I am giving my daughter more stress by putting her through all this. It was at one of these moments that I found Alopecia world and was tempted by something you wrote on mayo's blog to join up and start getting involved. I was relieved to find that you too had been diagnosed with a parasite. But most of the time I really believe in what I am doing and with regrowth now coming I am determined to stick to the diet and supplement routine.

She is now taking: LGS-zyme, p5p, vitamin D, molybdenum, omega 3 and folic acid. Originally she was on LGS-zyme, clearvite, vitamin D, liquid zinc, lymph and immune terrain, after 3 months she added to this the p5p and a vitamin and a mineral and complex and yeastonil and dropped the terrains and liquid zinc. At 6 months we dropped the clearvite, vitamin and mineral complex, yeastonil and added the molybdenum and black walnut.

I try very hard to vary her diet, her food is organic as much as possible and only home made. In Luxembourg the primary school children come home for lnuch so it is easier for me to keep control of what she is eating. I was very lucky she was never taken off lactose. It would have been much harder if that had been the case.

Breakfast is normally a piece of rye toast with honey and an omelette with Parmesan and chives. When she was gluten free she had the omelette and some cereal and milk. I found plain cornflakes with nothing added and a puffed rice cereal sweetened with honey. Lunch today e.g was turkey schnitzel (made with almond flour, polenta and Parmesan), broccoli, carrots, pumpkin and quinoa (she is off potatoes at the moment). Dinner was cauliflower cheese soup with gluten free pizza which I make with polenta, soya and rice flour topped with mozzarella, cooked tomatoes, artichokes, sweetcorn and Parmesan. She is allowed to snack on a piece of fruit a day away from meals. Other snacks are gluten and sugar free chocolate brownies that I make which have the secret ingredient of sweet potato in them or flapjacks (a British kind of oat biscuit) also sugar free. Other snacks are tortilla chips but only the ones that are made with sunflower or olive oil and minimal salt. I also make popcorn sometimes and try to get in a green smoothie somewhere.

I do believe that Alopecia is complex and that the trigger and treatment is not the same for everyone. I do not believe that if another Alopecia sufferer just takes the diet and supplement routine my daughter has and follows it, that they will necessarily have the same results. Something has compromised a sufferer's immune system and it may not be the same thing for each sufferer. I feel we have pressed the reset button where my daughter's system is concerned, detoxed it and now we are trying to repair the imbalance.

However I do believe that if we were to put everyone's experience of the disease, their ideas of the causes, their own progression of the disease and all the possible treatments and diets tried, we may find several common denominators that give us several answers on how to treat it on a large scale.

Sorry for the long post - but you did ask!

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Permalink Reply by Vanessa on November 7, 2013 at 1:32pm

I'm so happy for you Emily, I hope it keeps on growing! Let me know how it goes...

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Permalink Reply by CME on November 7, 2013 at 1:45pm

Hi,

I have alopecia universalis since I was 13, and my younger brother too. This your post caught my attention because my brother was recently diagnosed as celiac. I know that both are autoimmune diseases, but I was wondering if there is a direct link like: who has alopecia is likely to be an celiac or vice versa?

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Permalink Reply by buddhaz on November 9, 2013 at 10:47pm

keep me posted:)

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Permalink Reply by MissHoneyBee on November 21, 2013 at 1:13pm

Hi There, 

So I've been gluten free on and off this past year with no success, but then again, I haven't been very disciplined. My question is, how disciplined do you have to be? Is it okay to cheat once a week and have a little gluten? Or do you have to be very disciplined in order to see results? Also, I've been doing dairy free, but I read that greek yogurt was acceptable because it has little lactose, is that true? And are eggs permissible if you're doing gluten and dairy free? (Sorry, I've read so many inconsistent things on the internet, need clarification). 

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Permalink Reply by Lisav on November 22, 2013 at 7:07am

Hi there

I think the whole gluten free issue is more complex than just going gluten free. I believe Alopecia sufferers' bodies are out of balance for different reasons Do you know if you have a leaky gut for example? It would be best to get consult a naturaph, nutritionist or holistic doctor for advice if you can. My daughter was gluten free for 3 months but not dairy free. Now she is allowed gluten but no wheat and spelt. Where my daughter was concerned sugar was also a problem. Sugar is on the whole a problem in many diseases and lifestyles, cutting it out is a good idea for everyone. I think if you are really are going to try this you need to be disciplined. For the first 4 months we were very strict. After 8 months we occasionally have to relax the rules - she is a 10 year old and needs to have a break from time to time by this I mean perhaps twice a month when an opportunity arises but then not to overload on gluten or sugar. And she often has to make a choice between a piece of cake, apple juice or bread roll, not all three. Not all at once, everything in moderation. However at home we are still very strict. She is still experiencing regrowth and does not feel as if she misses out. It is possible to make delicious things cooking without. The Internet has loads of recipes. However she has me to manage her diet, it s not so easy for everyone and if she had been dairy free it would have been much more difficult.

Eggs are fine and gluten free. Goats and sheeps milk are supposed to have less lactose in them so are suitable for some lactose intolerant people, however I am not sure using a dairy free diet in healing Alopecia means you are intolerant. If the Greek yogurt is made from goat or sheeps milk it may have less lactose in it.

Good luck, believe in the path you have chosen and take each day at a time.

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Permalink Reply by Brandy on November 22, 2013 at 12:39pm

Hi Emily. What is the status have you seen more hair growth on your head?

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