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Regrowth with AU
I'm experiencing unprecedented regrowth, and want to hear about your similar experiences. I have had AU for almost 4 years now, first onset being in my mid-thirties. Possibly there was a link between my stressful job and the hair loss -- I've been away from that situation now for almost a full 3 years. I've been using turmeric (golden paste - supposedly good for anti-inflammation) in the past few months and that's all I've been doing differently than normal. I have tried about everything for varying periods of time over the last few years!
I now have patches of thick, dark hair coming in all over my head, (not connected...yet?) and I'm growing eyelashes and a bit of body hair here and there. I know from reading, not to be too optimistic or get attached, as it comes and goes. But this is something I haven't seen before, and it's all coming in at once.
What are your experiences with regrowth and AU?
Replies to This Discussion
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Permalink Reply by darius on
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Congratulations hope it is in remission and will stay this way.
That is what happened to my mother, it appeared out of nowhere and then went in to remission and it stayed like it for now maybe 25 years but my 12 year old son is not so lucky. He did have one regrowth episode when it went a bit wild and we had to trim his eyebrows and shave some parts of his face. Then it reversed to maybe 30% loss including eyebrows and eyelashes. Then again it reversed maybe 3 months ago and some of the spots on the head are now filling in while some spots specifically in the back are not showing any progress. Eyelashes are mostly back but the eyebrows started to show very tiny regrowth of few hairs but are still mostly gone. He is on Predisone, Clobetasol Foam and Rogaine. Luckily aside from the mostly missing eyebrows the longer hair masks any of the problem spots. Still its very hard on him.
It's a roller coaster and nothing is for sure and what worked for one case does not work for others. Then you have many situations where the body goes in to remission and it may appear its something we are doing but in reality it has nothing to do with it.
One thing I'm convened with is that anything we can do to lower inflammation and more specifically the root cause of inflammation in the body will help. In some cases diet may play a role and elimination of specific foods will help to calm down the inflammation. We are working on eliminating as many inflammatory foods as possible from the diet, adding inflammatory fighting foods while also using a combination of anti-inflammatory herb supplements including Turmeric, Ginger and Bonswellin (all orally). As long as the supplements do not have interactions with the other medications and other herbs then at the very worst you may have some small side effects. Also a much cleaner and healthier diet will also have all the other health benefits so it's always a win situation.
Do everything you can to lower inflammation and its root cause and keep the stress levels down.
Good luck with your progress.
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Permalink Reply by Cissie55 on
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I had regrowth at one point too. I was happy, ecstatic to say the least! Got it cut twice & colored only to be devasted again. It had gotten to a fairly cute length and then started coming out again. That same feeling of helplessness & panic was there once again. Good luck to you!
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Permalink Reply by Dena on
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My daughter is almost 10 and has been AU since the age of 5. Once she lost it all at 5, we didn't see any regrowth until June of last year. Starting with her eyelashes and then moving to her head. She even had some hair on her arms. Not much, but you could see some hairs. She had continued growth through February, almost covering her entire head, plus eyebrows were coming back. I tried my hardest not to get too excited. Unfortunately it all fell back out. The whole time she was having regrowth, she kept saying I know it probably won't stay, but it will be neat if it could come back for a while. So when it fell out again, she took it really well. After the first couple of years of developing Alopecia we stopped all treatments. She tried pretty much all of them in the beginning, but on her own decided to quit. She is extremely healthy with great blood work, so I really don't think it is related to any nutritional problems. I try and eat vegan, so most of our foods are centered around vegetables and whole foods. She does eat a little meat, cheese and eggs, but they aren't her main portions. So I don't really know what could have spurred the hair growth last summer and fall. Stress has never been an issue with her. She is probably one of the most laid back people I know. At this point she just thinks Alopecia is something she has that makes her unique. It really doesn't bother her much. The only thing I could guess that caused the regrowth was she did spend a lot of time out in the sun or possibly hormones had something to do with it. I wish you all the luck in the world. Hopefully you have found what triggers your Alopecia. You're beautiful either way.
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Permalink Reply by molly on
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Sounds like your daughter has a very wise and mature perspective! Thanks for your kind words!
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I have had alopecia totalis for 57 years I have had 3 growths in all that time. Each time I was pregnant with my 3 sons, after each of the children were born the hair dropped out again after approximately 6 weeks.
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Permalink Reply by LeslieAnn Butler on
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For what it's worth, I have been taking curcumin (tumeric) for many years, and have had no change. I have AU. I also am gluten free and vegetarian.
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Permalink Reply by Tuesday on
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fYes! Me too! I have been eating as you describe too. My hair fell out and I became Au while eating vegan grain free, antinflammation diet. My diet is incredibly healthy, I eat curries, take turmeric in paste or tea for my arthritis. Still AU!
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Both quercetin and curcumin are strong JAK inhibitors. Combined, they strongly inhibit 3 of the Janus Kinase pathways. With the new forms (water soluble - quercetin phytosome and curcumin phytosome), they may have more impact both orally and topically.
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