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Scarring alopecia
Anyone here experiencing the effects of scarring alopecia? I was diagnosed with this about 8 years ago while going thru high school. I had very thick hair, so thick that people would tell me on a weekly basis that I had the thickest hair they had ever seen, so it was easy to cover the bald spots at first. After I graduated it got much worse. I wear a wig now but feel so uncomfortable in it. I have considered shaving what remains of my hair and losing the wig but I feel the scarring looks so disgusting, and I am also self diagnosed with social anxiety ever since I can remember, even before the alopecia started. The two do not mix well. I can't even bring myself to the doctor anymore because I don't want ANYONE to see what has become of my scalp. I am new here and would love any insight from anyone who has gone thru a similar dilemma... or just simple conversation is welcome, too!
Replies to This Discussion
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Permalink Reply by Debs on
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Hello Matt, i also have a type of scarring alopecia, frontal fibrosing alopecia, I was diagnosed nearly 2 years ago. In the USA there is a group of doctors and patients that have for,ed an excellent organisation CARF to research and give support to those with scarring alopcias. There is a group on here also for acarring alopecia. If you are in the UK then the alopecia UK charity have support group meetings and a forum you can link up and meet. I have found interacting with other alopecians is the best medicine for my psychological recovery from this very stressful condition. I wear wigs and scarves, finding a practical way to cope has also given me back my confidence. If you are uncomfortable wearing a wig maybe there is another solution someone on here can suggest. I have seen in the UK that some men are having semi permenant makeup done on their scalps using very fine strokes to give an illusion of a cropped hair cut, it uses the same technique that is used for tattoing eyebrows, just an idea. This is a very hard condition to have, be kind to yourself and i wish you all the best.
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