My 11 year old son is on his most extreme round of hair loss - and just in time to start junior high school! In the past, it has started with one bald spot, which spreads into a "strip" of hair loss, which grows in almost as fast as he loses it (this happens every few months). So this time he has lost more than he ever has and it does not seem to be growing in. To make matters worse, he is starting a new school in a few days. I'm not quite sure what I am asking for here: advice, support or whatever! I am just so frustrated at the unpredictability of his AA! Thanks for listening.

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Thank you! Since we recently moved, this will be the third school we have to inform since my son developed AA about 3 years ago. I guess it is just a little scarier at the junior high level in a school that has about three times the number of students!

I am sending support.  My daughter Justina was just diagnosed in March with AA and she is getting more spots that we will be talking to the school and her classmates so I know your frustration but we need to think of the bright side this is an mere inconvenience and not a life threatening disease which I thank God for.  My friend's daughter a junior in HS just got diagnosed with lymphoma so that puts everything in perspective.  The best way to handle it is to educate the school and classmates on AA.

Sending strength your way!!

Theresa

Thank you Theresa. You are so right; we are so very lucky that our children are healthy. Most of the time I remind myself of this. I think it is just the unpredictability of when it will happen next that makes it so frustrating. Thanks for reminding me of what is truly important. How old is your daughter?

Pearl

My daughter is 12 years old and will be starting the 7th Grade on Wednesday.  The unknown of this disease is definitely frustrating and we are taking it day by day.

I am so thankful we have this group for support.

Throwing my support your way!! I have AU so I had already shaved all my head by grade 4.Jr High was the hardest for me because I started a new school because we had move to a different district so it was closer to home, so I knew no one but my older brother who was already a grade higher, but I had to start from the bottom. But your son will find friends who have similar interest as well jr high is that time everyone goes through changes. I found it made me stronger as well I got to know a ton of people as well my friends I've made in jr high , we all stuck together through highschool and stil friends today
It does get better !!

oh wow good luck to you

Junior high. I find that the sooner one finds a way to mark her/his mark in a fun, memorable, cool way, the better. The reputation will grow. So, start the chain of home pizza parties, maybe a game night or comedy movie marathon...with snacks. Get the trademark hat that a top team or rock star wears and make it the signature party (and school, if approved for medical reasons by the board) hat. Invite key pals on family outings or with another family. Sponsor a horse-back riding day. Anything memorable. Why do I say this? Because I STILL remember the coolest sleepover of junior high at the house of the girl who was too skinny (miniature golf, ice cream, seance and levitation, hanging out the window on a starry night), and the laughs from the shortest boy in the class when he led two others in doing a musical performance as The Supremes (these were all short WHITE boys in the egghead class, which made it extra funny). Did those two stop life and skulk away because they were too skinny, too nerdy or too short? No. They made a point of staying IN SIGHT in a big way, and we loved them for it. Your son will find his style and his group. It just takes some thought on what direction to go. If he laughs amd smiles first, the others will smile with him.

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