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Permalink Reply by Katie C on September 26, 2010 at 2:43am

Hi Lisa, your story sounds so similar to mine! I too have only just found the site in the last few days... I started wearing a wig only about 7 months ago, and I think I'm only starting to embrace the fun side of it (just ordered 2 new ones the other day). Maybe once I've had a bit of a play with it I'll be ready to shave the head and be out there! but I am starting to get out there with head scarves and beanies, and have gotten a swim cap thinking that I'll get out there this summer (also bought some cute swimmers to give myself the extra incentive... been on a bit of a spending spree... lol). Hope this site will help both of us grow and accept! =)

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Permalink Reply by Bald and Fabulous AKA Terri on September 26, 2010 at 7:02am

I too found this site only recently and too have found it truly inspiring with every ones stories and advice. Its great knowing that there is so many of us that are experiencing the same issues not just the physical but the emotional. I have had alopecia for about 26 yrs. And this is the first time I can now turn around and share my thoughts with some one that knows and in turn help others. Without everyone here I prolly would not have had the courage to so quickly shave my head and embrace it. Although there has not been a public display. But I know its close.
All the best with your journey, I believe you are in the right direction. And so close to the big step and diving into the ocean.

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Permalink Reply by Tallgirl on September 26, 2010 at 11:02am

I am a wig-wearer and you can read all my old blogs to see how I cope and what my attitude is! Welcome!

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Permalink Reply by Petra on September 26, 2010 at 2:53pm

Welcome Lisa. I just found this site this year and it has really helped me a lot. I have had alopecia for over 30 years and when I lost all my hair I would always wear a wig. Now I only wear one when I go to work and the rest of the time I either wear a bandana or scarf. Loving the scarf so much more than the wig. Hopefully one of these days I will just be able to go out au natural. Wouldn't it be nice to go swimming in the ocean again :-)

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Permalink Reply by Shereka Moore on September 27, 2010 at 10:14am

I had to get use to wearing wigs and I always thought that because I wore the wig I hadn't accepted the fact that I had alopecia but after finding this website I realized that I was wrong. I can accept that I have it and still wear a wig. I still at times get frustrated and want to shave all of my hair off but I know that it won't solve the problem that I am dealing with and I will be too afraid to walk out completely bald. Lol. I am more open about having alopecia than I was in the past. You should go swimming. Trust me once you face the fears you have about having alopecia you will feel so proud of yourself. Do not let alopecia define you. I know! I know! Easier said than done. I still have my moments when I wish that I had my hair back but I know that kind of wishing will only make me depressed and stay home even when the weather is soooo beautiful outside. I'm glad you found the website :-)

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Permalink Reply by Pat Latina on September 27, 2010 at 8:02pm

Shereka - I so am there with you. I thought the same thing - I wear a wig 23/7 and I think that if that is what I prefer to do, it's okay. I also thought that I was hidding until I found this site and realize that it's okay. I'm fine with telling ppl that I have alopecia (if they ask me) I don't go around with a poster, but am very comfortable talking about it. I also love my Freedom Wig. I think my challenge was shaving it all off for my freedom wig, I didnt quite get why I was holding on to a few strands, but when I did - what freedom!! This is an awesome site.

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Permalink Reply by Pat Latina on September 27, 2010 at 7:58pm

Lisa, I know exactly what you mean. I found this site by accident and OMG when I did. I think I stood up for hours into the morning, just reading, crying, laughing and sometimes just amazed. I couldn't believe that there were so many ppl with the same thing, with my feelings, with my thoughts. For so long, I thought I was the only one. I started off with AA now I'm AU, but I'm not alone and that is the beauty of this site. I've met so many beautiful ppl even from other countries. I love this. I've even have had the opportunity to meet a few in person. This is a great place and I'm so glad I found it and just like you so GREATFUL!!!!!

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Permalink Reply by Lisa Ward on September 30, 2010 at 3:38pm

I just want to say thanks to everyone who responded......wasn't expecting that....LOL....I guess you are put in a place for a reason and I found this site for a reason..........Thank you guys......so much.

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