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The cure!!!
READ WHAT DO YOU THINK.
http://bmcmedicine.biomedcentral.com/articles/10.1186/s12916-015-03...
Replies to This Discussion
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Permalink Reply by Jen on
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Thanks so much for sharing Skip. I have so many questions for you. 1) did they match the haplogroup of the cord blood stem cells to your own? 2) it sounds like you had a little arthritis in your joints that maybe improved, did any other existing diseases you have get worse? (feel free not to answer if that is too personal) 3) how safe and clean was the facility in your opinion? Let's start there. THANK YOU
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Permalink Reply by skip on
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I'll answer the best I can. 1) I don't think so. 2) all good. I have hashimotos hypo-thyroid and it's remained the same with synthroid daily. Otherwise I have zero health issues. 3) The actual lab where they did the treatment was super clean and felt very safe. I will say, the hospital wasn't the cleanest place. I'm use to Cedars here in Los Angeles so it felt very third world. I travel a lot so it didn't surprise me. But let's just say I wouldn't stay over night unless it was a total emergency. Jen I'm happy to chat on the phone about it if you private message me. Thanks!
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Je suis vraiment déçu, je pensais vraiment que de Quil a utilisé la bonne méthode ataquant la source du problème corigent le système uminitaire vous pensez que vous votre vien alopécie de votre uminitaire du système? A vous qu'il y avait beaucoup de l'échec? Je vis comme un rêve, mais je me suis trompé, il était trop beau pour être vrai Vous avez payé combien? En Chine, il est possible d'être à traiter ?
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Thanks for sharing skip! That's very disappointing to hear that you had no response. Do you know how many people have take part in this therapy, besides those 9 people from the original publications, and what were their outcomes? You mentioned that that girl in the photos had the best outcome. Did they tell you what sort of results have AU patients achieved? Finally, the publication states that the only person who did not respond had undergone a long-term therapy with oral prednisone. I assume this is not the case for you, correct?
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Hey... The doctor said that they have done hundreds of therapies for a variety of auto immune conditions. The doctor couldn't stress enough how it's just different for every patient. I like you want hard numbers and success stories and he just couldn't tell me that. As for AU...he did say that he had not seen full re-growth in very many. And that mostly it was eye lashes and brows. But he did see progress. That's why I'll say again (sorry to sound like a broken record) but I think a more concentrated therapy plan could do the trick. Currently they'll only do it every three months. And no, I've never been on oral prednisone for an extended period of time.
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Permalink Reply by pterese on
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I have read through this emotional discussion and feel as you all do, elated, then confused, enthusiastic, then saddened and frustrated. I want to share that there IS a drug that could work. It is Low Dose Naltrexone. We started with my daughter four nights ago. It is FDA approved and no side effects and non toxic. Even better, it is not expensive. I am happy to share links about this wonder drug. It has no patent, so of course drug reps have no interest in it. My dr. was unaware it could even help until I showed her all my research. Shame on the drug companies!
I eventually convinced her to let us try. The compounding pharm told me to be very patient and that I would be quite "pleased" with the results.
This drug works through using endorphins to balance the immune system and even reverse autoimmunity. It calms inflammation rather than supressing it.
Here are some links. I have researched every page and article on the web regarding this drug. I do think results will come. Have a look
https://www.youtube.com/watch?v=l8sWzoLtop4&list=PLqpCYF91KxNYz...
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Low-Dose Naltrexone Benefits
"Many Autoimmune Diseases Our physicians at The Center for Natural & Integrative Medicine also prescribe another overlooked, yet very powerful drug for autoimmune disorders: low-dose naltrexone (LDN). Small doses of LDN taken at bedtime have a powerful balancing effect on the immune system, making it an excellent therapy not only for autoimmune diseases but for a wide range of other conditions as well."
This is where I first found LDN. I live in CA, but was looking everywhere for options, even FL. You can get LDN from homeopathics.
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Thanks for posting this, please let us know if your daughter improves!
Did you read this article on LDN?
https://www.sciencebasedmedicine.org/low-dose-naltrexone-bogus-or-c...
When a treatment is claimed to cure so many things, it seems safe to be skeptical, but I would love to hear that it does work for Alopecia!
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There is a big conference happening in Florida with medical researchers sharing studies and progress.
Penn State is a leader in research. Here is the sad part. LDN has no patent. Therefore, pharmaceuticals do not promote nor market it. They do not FUND research. No patent means no PROFIT for them. It is very affordable. I aid $60.00 per month for my daughter.
This Dr. is a lead researcher:
https://profiles.psu.edu/profiles/display/113208
More Information
http://www.autoimmunemom.com/general-autoimmune/low-dose-naltrexone...
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