The staring has started

AA is back in my 6 year old for the third time in her short life. However, it doesn't seem to get easier, only harder. Now she is aware of the stares and the people glancing towards her and the other kids at school are meaner and make fun of her.

Her patches now are noticeable again, I got the first long stare at the patch on her head at the supermarket the other day, and this morning she was nervous at the school gates as it was the first time she was wearing a scarf.

I hate this disease with a passion, I hate what it does to my daughter.

I need a place to vent so please excuse me.

I am searching for some funky hats on the internet, but to be honest some of them are so, well, frumpy.

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Permalink Reply by Dorothy G. on September 11, 2013 at 9:39am

If you can sew, I would suggest going to the fabric store and letting her pick out some cotton prints for chemo caps (I found a pattern online from a 4H group of kids that made them) or bandanas. I make them for myself to wear at the gym.

I'm sorry for your situation. It's a hard disorder to deal with and accept, because it is so unpredictable.

Wishing you the best!

Permalink Reply by GottabeKate on September 20, 2013 at 10:09am
I would take her to a specialty hat shop. My best friend worked at one for years- they dealt a lot with cases of hair loss and how to cover it up and still look cute and fashionable. And that way you can make a fun shopping day out of it!
Permalink Reply by Jessica Hoschouer on November 4, 2013 at 6:02pm

Just know this and be prepared... The staring may never stop from strangers. But those who see her a lot will start to become more used to it. It only gets better from here on out. I am sure that she and others will come to except this new her.

Permalink Reply by amym on November 5, 2013 at 9:49am

Vent all you need to. It is a hard disease to deal with. Seeing she is just 6, I'm not sure if the hats would fit her, but if you have an Urban Outfitters near you they have some great hats that are "cool" instead of frumpy. My husband bought me about 6 hats from there a couple years ago. 

A fellow alopecian bought me a scarf-like cover-up from a group call Chemo Beanies. They are quite adorable. Here is there website: https://chemobeanies.biz/

Depending on the area you are in check with www.naaf.org and see if there is a support group near you to either attend or to contact the support group leader and find out if he/she has a list of shops in your area that specialize in head pieces. 

I hope this helps.

Amy

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