hi everyone,

i can't find a specific discussion topic related to this (but i think the "search" function on this website may be faulty; even when i search for topics that i know are on here, they don't come up).

anyway, my 9 year old daughter was diagnosed with ophiasis subtype alopecia areata about 8 months ago.  we tried intralesional steroid injections and monthly oral prednisone pulses.  after 7 months, there was overall progression of disease.  a few weeks ago, we started her on topical ruxolitinib from chemrx in philadelphia.

the pharmacist i spoke with said that some of their patients are definite responders to the drug, but on this website, i've seen comments suggesting that most patients do not respond to the topical form.

if you are doing topical ruxolitinib (or topical tofacitinib), please let us know how you are responding.

thanks,

mo