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Universalis folks, a question:
My son is 11 and developed Universalis over the past 6 months. He has no hair left anywhere save for a random one here and there. How likely in your experience will his hair grow back (knowing it will likely fall out again) with or without treatment of some sort. I want to know if we need to just accept this as the new normal. Thanks!
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Permalink Reply by marisa on
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This is pic of sept 1...Im not sure it was attached to my 1st reply
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Permalink Reply by Fuzzless on
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Hi Katie,
My heart aches for your son - and for you.While you are looking for the best treatment path for your son, you may be interested in joining the group called the Children's Alopecia Project - there are chapters across the nation. I think your son may benefit from connecting with other children with the same issue. I know it was a lonely road for me and it made a world of difference when I met a friend who also had the condition.
This one is in Southern California: https://www.facebook.com/SOCALCAP?ref=br_tf
This one in Northern Calif: https://www.facebook.com/NORCALCAP
This is the main one: https://www.facebook.com/ChildrensAlopeciaProject
Find a CAP Kid Group near you at http://childrensalopeciaproject.org/support-groups/
Follow their Blog at http://childrensalopeciaproject.blogspot.com/Best of luck to you and your son! I hope that all his hair grows back and stays with him for life!
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