What is the biggest problem you have with your alopecia?

What is the biggest problem you have with your alopecia?

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Permalink Reply by Nickibee on October 4, 2015 at 9:12pm
Ever try tape? I'm a runner and I use that and it works well!
Permalink Reply by Rach1992 on September 1, 2015 at 1:45am

Not feeling like my face or look is complete and that my head is off balance. feeling unattractive to many guys and feeling like people think I have cancer. Being annoyed that I don't have a choice in something that seems so damn trivial but ends up being a big freaking deal for a young single lady. More than one but it was hard to choose.

Permalink Reply by Steve on September 1, 2015 at 3:25pm

Feeling unattractive, losing my identity and confidence.

I am fighting back though. I will win.

Permalink Reply by Sarah on September 2, 2015 at 2:04pm

I'm sure you will win. I had the same feeling before I feel better now but sometimes I lose my identity and confidence to when I want to go out without wigs.

Permalink Reply by My Dream on September 1, 2015 at 6:45pm

Hi, just cold weather

Permalink Reply by Sarah on September 2, 2015 at 2:06pm

Hi, you can use hat. even with the hat you still feel cold?

Permalink Reply by My Dream on September 5, 2015 at 4:00pm

I just use cap but I do not like and I am not confident with

Permalink Reply by CM on September 2, 2015 at 7:27pm

The mental, psychological  path to how I will deal with, respond to all that comes with having no hair, and now eyebrows and eyelashes. It is so much to try to accept and go forward. It is a continuous way through a unknown jungle where hats, scarves and wigs are my new collection. the terrible knot in my stomach when someone sees me bald. I want the freedom to go uncovered but my system is just not ready and don't have support to go uncovered.

Permalink Reply by Nammer on September 2, 2015 at 8:52pm
Ummm the stares.. But that doesn't bother me at all.
Permalink Reply by AMM23 on September 3, 2015 at 9:47pm
Some days it's all I think about and obsess about it. Other days I feel okay.
Permalink Reply by GardenJess on September 4, 2015 at 11:09pm

Well, there are moments like today when I was hurrying to get my kids at school, walked under a low branch and knocked back my hat and wig. With no other option besides pulling everything off in front of lots of onlookers, I left my wig kind of stuffed into my hat and held the hat on with my hand as I scurried on.

Seriously, I think my biggest problem is settling on what to do about my hair. In my 2-3 years of hair loss, I have yet to decide if I want to be seen as someone with hair (wig and normal), or just to go about as myself (scarf, cap, or shaved and definitely not normal). Not making a clear commitment to one approach or another (even a mixed approach) leaves me thinking more often about my lack of hair and having to make decisions over and over again.

And then there is accepting that it isn't going to grow back, and despite my 40+ years of having hair, the world would only see me as mostly bald.

Permalink Reply by Leanna on September 5, 2015 at 4:32am
Yes,I feel the same way. I just shaved my head and sometimes when I'm out in public people can say some mean things.I just try to stay positive and not worry about what's being said.

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