When you didn’t believe it would be worse

I have 9 years whit Alopecia Areata. I have ups and downs every month. And it’s ok.

Then, last summer I started losing some eyelashes, and now I don’t have any eyelashes on my left eye. Woho! Just on my right side, but it seems that it’s going to fall off soon too. What’s the point on just loosing on one side? Clearly it’s something :p

It just didn’t seem fair! And then I went in my state of mind where it’s ok, and nothing to do whit, and I’m lucky because I don’t have cancer or have lost a limb or something.

I have always gone in this place where I’m lucky and accept things as they are, I’ve done it sins I got aa J So in my 9 years whit aa, and this Saturday was the first time I ever sign up for a community online that have the same illness. And I’m so happy that I did!

So people, help me! I need good advises on fake eyelashes, what’s good and if some of you have experience the same.

Love from the cold North! J

Views: 883

▶ Reply to This

Replies to This Discussion

Permalink Reply by Sheryl on February 28, 2014 at 9:35pm

Hi Clay, it's really annoying to say the least isn't it. I have some hideous ointment to put in my eyes at night, and when you blink it covers your eye so you can't see a thing!!! I don't know which is worse the complaint or the

Permalink Reply by Janita on August 3, 2014 at 5:09pm

im sorry to hear that! :/

But this summer i tried something New, its cald " Stimulashfusion", its an fluid that you put on the upper lash only at the root area(as if u were puting on an eyeliner) every night for some weeks.

Its full of vitamins and Natural extracts to help the eyelashes to grow.

I did this, and by god i did work! I have littl hair coming up al the way around my eye!

ive not don this more than 2 weeks, but i will tell you if they are growing more out!

J

Permalink Reply by Laura on February 28, 2014 at 7:16pm

Hello Janita

 I truly understand how you feel what I dont understand is the whole AA because my doctor always says he doenst know why its happening to me...this is my first year and I am bald at the top spots in the back of my head and no eyelashes but i have my brows...I really dont know why it attacks certain parts of the body still doing research. I met a really sweet young lady on her name sheryl and I think I would have broken down if she wouldnt have befriend me.. it helps talking to someone who truly understand. how everything works out for you.. God Bless enjoy your weekend

Permalink Reply by Janita on August 3, 2014 at 5:13pm

Its good to know that we are many!

 And youre Lucky that you had that lady to help you, too many struggles with this alone :/

have a Nice weekend you too! I realy hope that you keep youre brows and that youre eyelashes will Return!

J

Permalink Reply by LK on August 3, 2014 at 7:03pm
I feel the same as you. My sister's immune system attacked her kidneys. She could die from this. As much as we hate this hand that has been dealt to us, we know that it is not life threatening. Still, it still is so frustrating. I've had it for 15 years. Losing hair, eyebrows, now lower lashes. It stinks.
Permalink Reply by Janita on August 4, 2014 at 3:39am

Im so sorry to about youre Sister!:-( i realy hope that she gets better!! 

Do you use a wig? IT sucks that IT only gets worse:-/

J

Permalink Reply by LK on August 4, 2014 at 1:14pm
No, I don't use a wig. My hair has gone from looking terrible to almost looking normal. I use men's rogaine and Nioxin shampoo #6 everyday. I still get frustrated. The "new" hair growth always looks so scraggly and frizzy. And the rogaine gives me chin and upper lip hairs. Sometimes, I just have to laugh. I get hair where I don't want it and it won't grow or falls out where I do.I feel like such a whiney brat.
Still it keeps my 6'4 husband from commenting about the balding spots. He has male pattern baldness though so I do get sympathy.
I draw on my eyebrows and eye shadows and eyeliners help camouflage the hairless skin. I want to ask about false lower lashes. We have our 25 th wedding anniversary coming up and I would like to look good.
Permalink Reply by Taz on August 12, 2014 at 2:33pm

Hi Janita,

Sorry to hear your are loosing eye lashes in one eye, I hope they will grow back quickly! Do you still cope ok with having AA after 9 years? there are some semi permanent tattoos you can have applied at beauticians even ones you can have on your eyes, its like eyeliner but darkens around your eyes and it gives the impression of lashes, good luck with what you do :)

Taz 

Permalink Reply by LK on August 12, 2014 at 3:51pm
I so understand. Nine years is a long time. I've been dealing with this for 15 years and I wish that tomorrow I would wake up and it would all just stop. The constant merry go round of losing it, growing it back to losing it again. I really do not want to wear a wig. Those things are hot if you still have some hair. I really don't want to shave what I have off. Hair pieces just weigh your hair down and cause damage.
Then,like you, I tell myself... I could be blind, dying of cancer, have a child or husband dying, have a child with this dreaded disease. It's only hair. ...
I'm so happy to learn of this website. I feel lucky to have found it too.
Permalink Reply by BLee on October 4, 2014 at 8:13am
Hi Janita. I have had alopecia 26 years now and it was so hard at the beginning. I was 24. Now at almost 51 I finally have reached out to others with alopecia. I've been wearing hairpieces and fake eyelashes for many many years. I get eyelashes at walgreens mostly. I put them on every day to go to work. I just feel so naked without them. I have my eyebrows tattooed on 3 years now. I wear a lot of hats too! I know we are all beautiful even without all the hair and makeup but I am always approached by others when I just wear a hat. Asking about chemo treatments! I'm so tired of explaining. Do you feel the same?
Attachments:

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service