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Where to begin
I was recently diagnosed with alopecia. Im not sure where to start. Can someone give me insights and education on this condition?
Replies to This Discussion
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Permalink Reply by hagster on
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Sorry that you were diagnosed with alopecia. And, there really isn't a place to start. Each case is so individual in how it proceeds or affects certain things, that I'm sure you are lost.
There is a lot of information and personal insight if you read these discussions. The National Foundation website can be helpful as well as just Googling and reading info on different sites. My suggestion is that you try and deal with each problem as it arises.
I will assume that you have been to a dermatologist for your diagnosis. Each kind of alopecia acts differently: areata is hair loss circles on your scalp and can generally be treated with shots in the scalp and Rogaine; totalis is the complete loss of hair on your scalp and sometimes includes your lashes and nose hair; universalis is loss of hair on the entire body.
Take charge of the situation. You (& your derm decide on treatment) as desired, useful, and if needed. If scalp hair loss is extreme, you decide if or when to shave your head. You decide when or if a wig is appropriate, what kind or color to buy, if you want to go bald proudly, or if you want to cover with a scarf.
Extremes can call for extra makeup, false lashes, latisse, permanent eye makeup, microblading brows, how to keep a wig in place, scalp breakouts, and other problems.
If you have a concern or problem, you can always come here and ask. Someone more than likely has had the same thing happen to them.
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Permalink Reply by LizO on
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Thanks for the info. It's kinda hard to get updated info because it's like everyone has been inactive since 2013.
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Permalink Reply by serg navaro on
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Hello LizO, I know how you feel, I was 13 when I was diagnosed, I went to different dermatologists until I was introduced to the Alopecia registry here at MD Anderson cancer center in Houston, we did a few treatments but unfortunately they didn't work, I've kept in contact with them over the past 14 years, I'm now 27 yrs old and have started xeljanz for treatment but with close medical monitoring. You can always go through the process of enrolling into the Alopecia registry and if there's ever any studies that you qualify for they'll actually contact you.
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Thanks. One thing that I worry about is if my AA can turn into a different form of alopecia
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It's so unpredictable, mine started off as a small patch and quickly turned into full scalp loss, I was 14 when I lost all my hair on my head, I had to wear a full cap wig all through hs, it was tough but I got through it all. I don't mean to frighten you, it's just so unpredictable. Just stay positive and do research, there's so much information out there, this website helped me learn so much about Alopecia, I'm still learning to live with it and luckily I found a place here in Houston that makes great hair systems while I undergo this treatment
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It’s wonderful when there is a similar site where you can find understanding and support, at such moments you realize that you are not alone. At university, I had a friend with alopecia and then I decided to read more about it, she taught me a lot, and also advised the best research proposal writing service. She is very cheerful, she has a lot of hobbies, and we often travel with her.
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