Alopecia World
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I need someone who knows what I'm going through/been through
Replies to This Discussion
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Permalink Reply by coccinelle on
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I understand you, I life the same thing(matter), I stay at home and I find nobody to speak or to understand(include) that I life in the quotidient and especially which I do not support(bear) to see myself in the ice(mirror). Then I asked of the help(assistant) a psychologist and we work above (I do not find difference) but here in France if I want to stay in long disease I have to make what the doctors say or if not I would not have any more of returned. They do not understand(include) our suffering good luck to you and courage
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i have recovered 100 got it last year stayed for sic months and then recovered i am staying in malaysia and happy that i recovered fully
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treatment is very simple any body needs help call me +60102526429 it tok me six months to figure out how to deal with it i am glad becoz it take people whole life to fight with this by the grace of God i am happy and ppray for others to be happy i have the knowledget o deal wit hthis disese and want to help others any body want to know let em know
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Permalink Reply by monica on
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I'm not sure what treatment you are refering to,,to my knowledege there is no cure for alopecia...if you know something I don't...I would like to know...
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Permalink Reply by Kami M. on
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I too have had Alopecia Universalis since 2006. I had hair in early May, found 3 bald patches in late May, Lost all of the hair on my scalp by the end of June and by August I lost all of my body hair. I have never heard of Alopecia until I was diagnosed with it. They've tried multiple treatments, sent me to U of M , tried experimental drugs with no success. It was horrifying, I felt alone, an outcast, everyone assumes I am sick and going thru radiation and chemo. After 5 years I can say I am finally starting to feel comfortable in my own skin. This is who I am, it does not make me less of a woman. I use to look in the mirror and not even know that person inside or out. It's rough! But I lost my hair, not my life, not a limb, not my mind, I have so much to be grateful for and I focus on those things :)
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Permalink Reply by elaine on
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Hi Jen I've had AA since I was 13 and I went through pure hell as was going through secondary school I felt totally alone and put on a brave face but sometimes you just got to blow and I found writing it all down helps. I'm now 44 and totally lost my hair after major surgery 14yrs ago. It's hard to really say how I feel but I guess since I've had it so long it's part of me and to be honest I think I have blocked out all the hard parts from when I was younger. It feels like "why me?" I missed out on the teenage part of learning about how to style my hair etc though I did try with the wee drop I still had. I've become quite lazy when it comes to styling my wigs because it just feels too much energy lol. I now see it as part of me and I love my bald head to be honest. You are not alone though and please stay with the group but be aware there are sites out there that will try and con you into guaranteed hair growth and ask for money....STAY WELL AWAY FROM THEM.
I'm here to talk to if you need to ok as are the rest of the group.
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Hi,
My name is Adam Pongan I have AA for 21 years. I have seen loads of doctors and tried every solution available. The best thing to do is to love yourself it took me 15 years to take my hat off. I now love myself. The only thing that needs to be fixed are the people that do not support you. I dropped out of school and got into drugs because of my hair loss. Fight it head on become comfortable with yourself and eventually you will love your self and the rest will fallow.
XOXOXO
Adam Pongan
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hi my name is juan i am based in malaysia from last three years i got this 10 months ago now i fully recovered and it took me four months to find out how i can get rid of this and used every way possible but i find the cure and now happy living and want to help other who can also recover from this my mobile number is +60102526429 and if need advice can call me or message me its never too late and its cureable.
regards juan
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Permalink Reply by Just Ask on
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hey jen, hang in there, if you ever need to talk or have any question, please feel free to ask.
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I'n not if the last reply was posted,,,I mentioned I have had alopecia since very young,,as so many other people in this site..I have also gone through some unimaginable things...let me know what it is you are not sure about or have a hard time understanding...as far as my understanding...I have what I have and there's not really much I can do at this time but accept it...I have grown to look at myself in the mirror and love myself the way I am...
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Permalink Reply by Carlo on
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Hey Jen if you want you can call me. I'm 30 now and i've had it since 1993, so i think i know waht you're talking about. orange.crush@live.it is my msn contact, call me if you want.
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Permalink Reply by ROSE WOSE on
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WOW WOW WOW...ALL I CAN SAY IS CONGRATULATIONS TO THIS COMMUNITY....JEN IT IS VERY OBVIOUS THAT YOUR PAIN AND SADNESS ARE OURS AS WELL...JUST KNOW THAT WE ARE ALL OUT HERE SENDING YOU ALL THE STRENGTH AND COURAGE THAT YOU WILL NEED TO LET YOUR BEST ATTRIBUTES SHINE. HAIR IS SO DARN IMPORTANT IN DEFINING US AND MAKING US JUST BLEND IN BUT YOU WILL SOON DISCOVER SO MANY MORE GREAT THINGS ABOUT YOURSELF THAT REALLY MAKE UP WHO YOU ARE....YEP WIND, TREES, DANCING, HAIR SHAMPOOO COMMERCIAL,SWIMMING ARE THINGS THAT YOU WILL NEVER TAKE FOR GRANTED BUT SOON YOU WILL REDISCOVER THAT LIFE ITSELF IS FABULOUS AND IT IS SO SPECIAL AND WORTH LIVING WITH OR WITHOUT HAIR....IT IS ALL IN WHAT YOU CHOSE TO HANG ON TO OR LET GO.. SENDING YOU A BIG HUG OVER THE WAVES. WISH I WOULD HAVE HAD THE KIND OF SUPPORT SHOWN TO YOU HERE ,33 YEARS AGO....HOPE YOU CAN REALLY FEEL OUR ENERGY...HUGA HUGA ROSE
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