Medication

Hii,

I was just diagnosed with chronic Alopecia Totalis and it’s very hard on me. My dermatologist wants me to start cyclosporine or methotrexate. Both medications require constant monitoring and can make me feel very sick. I don’t know if i should take it or not. Is it worth it? Have any of you started medication? What was your experience like?

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From AW:   

Here are some Other post on cyclosporine and on methotrexate.

Also, on October 2023, Dr. Brett King & NAAF gave a treatment update that you may want to watch.

With a second FDA-approved treatment announced in 2023, there is new information to share on treatments for alopecia areata, how they work, and what we’ve learned about the disease from clinical trials. Join Dr. Brett King

 https://alopeciaworld.com/video/alopecia-areata-treatment-update-an...

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Replies to This Discussion

Permalink Reply by Glowworm1202 on January 2, 2024 at 12:11am

I have Alopecia Universalis. I’ve taken both, but not at the same time. I was started on cyclosporine but didn’t have any regrowth after taking it for a while. My dermatologist switched me to methotrexate and after taking it for a few months, my liver enzymes became elevated and I had to stop the medication. I will say that the frequent blood draws got old really fast. I didn’t have regrowth on either medication. 

Permalink Reply by Solita on January 10, 2024 at 6:27am

Thank you for your response. I’m sorry to hear it didn’t work out for you.

Permalink Reply by Charlotte on January 2, 2024 at 1:11am

I was on methrotrexate and had full regrowth and very little side effects! But then came corona and I had to stop because it lowers immune system. All hair fell out again. And then I got pregnant. But now i'm going to take it again. 

Permalink Reply by Gary Sherwood on January 2, 2024 at 12:12pm

 

Hello,

Please refer to the National Alopecia Areata Foundation's information on available treatments on the following website pages:

https://www.naaf.org/available-treatments-2/

https://www.naaf.org/other-treatments/

Note that there are now two FDA-approved treatments for alopecia areata: Olumiant (baricitinib) and Litfulo (ritlecitinib). NAAF has a recent webinar presentation that discusses the most up-to-date information on these treatments.  The webinar is available here: https://www.naaf.org/watch-learn/upcoming-webinar-king/.

Good luck!

Permalink Reply by Cheryl, Co-founder on January 2, 2024 at 7:25pm

Thanks Gary!

Permalink Reply by Solita on January 10, 2024 at 6:28am

Thank you

Permalink Reply by Solita on January 10, 2024 at 6:28am

Thank you for your response. Good to know it worked for you and that you had little side effects. Hopefully it will work again!

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