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Comment by Matt (Mikayla's Dad) on April 18, 2016 at 4:35am

This site is extremely helpful, especially when you have questions, or just need to let some steam off sometimes. Glad to meet you!

Comment by Gurlsagemini on April 18, 2016 at 12:41am

Hey yall I'm a new be 4 years going on 5 with AU so great ful for this site!!!

Comment by Matt (Mikayla's Dad) on June 9, 2011 at 4:28pm

Yes. Karen flew here to do the 3D scan...no plaster mold...then when it came in, we went to Chicago to get it and get it cut. We didn't HAVE to go there, but we wanted to use a stylist that we knew had experience with a vacuum piece. Plus, it was Spring Break, so we just made it a family vacation at the same time! It's only an 11 hour drive...not a lot compared to some of the vacations we've taken as a family! :o)

Comment by Laura on June 9, 2011 at 4:20pm

Sounds great! Did they come to you in Arkansas?

Comment by Matt (Mikayla's Dad) on June 9, 2011 at 4:15pm

I do know that they have completely changed the cap...it is a softer and vapor permeable silicone...no glue between the layers...not hard cap like it used to be. Just thought I'd point that out since you've had a bad experience already. Mikayla says this one is not hot at all, and it NEVER loses it vacuum.

Comment by Laura on June 9, 2011 at 4:12pm

Thanks so much! I will look at that website, I know they are costly we have bought one when he was 7 it was a terrible expereince for all so we have been unsure about another one! I will tell him to look her up on here. Thanks so much!

Comment by Matt (Mikayla's Dad) on June 9, 2011 at 3:48pm

Hey Laura! Mikayla absolutely LOVES her freedom! Karen (newlifehair.com) is the rep for this area and she is absolutely wonderful. It's pricey, but WELL worth it! Mikayla will be 14 in 10 days and is going into the 9th grade next year. She has never gone to school without her hair, but she is telling more and more people about it. She made flag line for the second time this year, and all the girls had a swimming party the other night...I told her she was fine to swim in her freedom if she wanted, but she decided to take the opportunity to tell all the girls about it. I still just can't get over how strong she is sometimes! They all took turns combing her hair! :o)

If you have any specific questions about the FW, let me know. I'm glad to tell you as much as you want to know. Also...Mikayla is on here as well if your son would like to contact her to talk. Her name is Kayla Paige. She met another boy with Alopecia when she spent some time at Arkansas Children's Hospital this past year...he was the son of one of the nurses there, so she brought him in to meet her.

Comment by Laura on June 9, 2011 at 3:39pm

Well you posted this some time ago, we are from Arkansas to! My son has had Alopecia for 6 years. He is in Jr High now and wants a wig, how are you liking the Freedom wig?

Comment by Matt (Mikayla's Dad) on August 12, 2010 at 9:46am

I do not have alopecia, but my daughter does. She just turned 13 this year, and actually started losing her hair when she was 11. She lost patches at first, then it got worse and worse. At the moment, she has lost just about all of her hair on her head, but she still has a few patches that grow like crazy!! Just this week, she started losing her eyebrows, so I'm not sure if that means it's progressing more or not.

She has gone from wearing head bands, to bandannas, to a synthetic wig. For the last year or so, she's been wearing custom lace wigs which have been nice. This Saturday, she is being fitted for a Freedom Wig, which we are ALL very excited about. She's excited about not having to tape and glue, AND, she can take her hair off whenever she wants to.

When we go out of town, or we're with family or friends, she usually doesn't wear her hair. She's comfortable just being like she is. Her only concern, and her only reason for wearing hair and not being completely open about it is school. She is going into the 8th grade, and last year, before she got her lace wigs, some kids figured out she was wearing a wig and made fun of her. I think her fear is that she won't be accepted. We're working on that, and I am positive that before too long, she'll be just fine. She'll get to the point that she knows who her friends are, and it really doesn't matter what anybody else thinks!

I'd love to hear other stories, so post away!! :o)