Replies to This Discussion

Permalink Reply by Kathy D'Angelo on December 7, 2011 at 9:56pm

Hi Deanna,
When I was a child, my parents were told I may have leukemia, obviously a blood cell problem then. I lost my hair for the first time at 16, later went on to Addison's Disease, thyroid disease, and myasthenia gravis. I have had eczema but after taking soy out of my diet, it cleared up. Same thing happened to my niece and after stopping the soy, hers went away also. Over the years, I'm 67 now, the alopecia has come and gone, but now it's universalis and I have come to live with it, really can't be bothered trying to fight it. Good luck.

Permalink Reply by Pat on January 28, 2012 at 4:56am

As far as I know my white blood cell count is normal...I have regular blood tests and only the inflammation markers come back on the high side but even this has gone down lately and for the last 3 days I've been of prednisone completely. Wondering how I'll go, it's a little scary to think I may have a flare up of symptoms but hopefully I won't. The fatigue is still there but not so bad as it was a few weeks ago [although I needed a sleep after work today] and the bursitis in both hips is still painful but the pain in my muscles from the polymyalgia rheumatica seems to have subsided. Hopefully it's run its course after 18 months. We'll see.

Permalink Reply by Heartbreaking on April 29, 2015 at 12:19am

My son only 4- almost 5 was diagnosed with AA and then had some extensive blood panel testing and the list is so long that was not normal but then they tested food allergies and I just about fell on the floor when they said it was positive for gluten and eggs and now shell fish- due to a severe hive outbreak after having Oster Sauce which we were using to replace gluten soy sauce.

We are continuing his medical treatment at Mayo clinic in mn but I am shocked to learn how many people who have this have food allergies. From what we've been told so far is that gluten has damaged his villa in his intestines and therefore he wasn't able to take in the nutrients from his food after it was broken down. As a result, he had many cavities, many illnesses, caused low platelets and deficiencies in many vitamin levels and now his hair loss. We just dont know how much damaged there is in his intestines and if it will heal- but very helpful. The Drs we've seen for the past 3 yrs would not do those extreme blood tests or food allergy testing- if they had, he wouldn't have had so much damage. The one saving grace is that there is sooooo many gluten and even egg free receipts and knowledge/ resources now that yrs ago were not. The change hasn't been hard at all for our son and our whole family is now on his same diet plan. The dr said he won't ever be able to eat gluten again but that the egg and other allergies will go away after he's completely healed. Gluten is so hard for most people to digest because it's complexity in bio structure. Please, watch the 10 foods you should never eat by dr Glidden on YouTube.com - it will make it very easy not to eat gluten.
Good luck and your body can heal in amazing ways- so we are trying to stay very hopeful for our son and our families and all of you who are suffering as well!