Replies to This Discussion

Permalink Reply by Rose Marie' on August 22, 2011 at 9:57pm

Hi Paul

What sort of age group are you looking at Paul?? Do you want to include children, tweens and teens??? Or have you something else in mind. Let me know as I think I should be able to help with some numbers - possibly. :)

Rosy

Permalink Reply by PaulJ on August 22, 2011 at 11:45pm

I don't know really lol. haven't really thought about it At first it would be open to anyone I guess, the kids can be off having fun doing "something", and if AA adults turn up they could have a chat over a coffee, guess it all depends on the facilities of whatever place we find.

Alternatively the event is just a bbq or such that has something extra there for the kids to do while the Adults chat. Your know me, am just trying to get others thoughts without thinking too hard about it :).

Permalink Reply by Rose Marie' on August 23, 2011 at 2:01am

Ok, understand.

My thoughts around this is that it should be open to all who would find it helpful to attend. (all ages, families etc.).

A few years ago I organised a wee get together in Auckland at a restaurant, that went well for everybody. Parents, teenagers, children. Maybe something over a lunchtime with somewhere nice for the younger children to play (even something a little organised for them) so parents/ and adults can have a wee chinway. I know PCAF have had great response with Pizza nights. Easy for everyone.

ummmm... location - where you get the best response? anything... not a lot lol

Hope that helps a little.

Rosy

Permalink Reply by Ali on August 27, 2011 at 9:22am

Hiya, i love that everyone is on the same page here, i have been thinking of trying to find my daughter some friends "like her" to show her she is not alone. She has just turned 6. We live in Hamilton and i know of a couple of 13yr old girls that would definately be keen and a 19yr boy who might be interested....i know his mum is!
Auckland is good for me its easy enough to get to from Hamilton. i don't think i could afford to take my family out of the north island. But it all sounds fantastic, Pot luck lunch would be perfect, i'm sure Rainbows end, waiwera hot pools and auckland zoo have areas you can reserve that have BBQ's Even a big playground or park...possibly a beach in the warmer months could be an option aswell.
Look forward to hearing other ideas and eventually meeting you all.

Ali xx

Permalink Reply by Bex Weller on September 4, 2011 at 5:19am

Hello :)

Well I'm certainly not a kid any more, but I'd love to be able to help young people & families if I can in any way!
Keep me posted on what's happening!
Cheers Bex :)

Permalink Reply by Ang on February 7, 2012 at 7:46pm

Hi, not sure if his went ahead, but I am new to this site and would be most interested if you are thinking of doing another event.

cheers
Andrea

Permalink Reply by PaulJ on February 7, 2012 at 9:17pm

Hi,

I didnt actually get that much feedback and then I've had a load of issues due to the earthquakes (insurance claim excess'es really do suck !) but hopefully one day we can get something organised

Cheers
Paul

Permalink Reply by Ali on February 8, 2012 at 3:29am

Hi Ang, I tried adding you as a friend not sure if it worked?? My daughter has alopecia also and is 6 yrs olds would love to Meet you guys! Email alisondunc@gmail.com we live in Hamilton

Permalink Reply by Carl on February 8, 2012 at 3:54am

Hey Paul. Im no kid myself but happy to help in any way. Transport, research etc. Just shout up and let me know.

Carl.

Permalink Reply by kiwigirl73 on June 17, 2012 at 9:57pm

I would be keen to make contact with other families that have a child with alopecia. My daughter is 11 and has had alopecia since she was 8. We live in Manawatu.

Permalink Reply by MummyWendy on April 2, 2014 at 5:19am

Am a bit late to join the discussion I know! But my daughter is 8 and was diagnosed age 3. We live in Wellington. If anyone knows of any other children with alopecia in Wellington it would be great to hook up and have a chat - thanks!