Reading the comments about being tested for Lupus triggered some thoughts for me, and I wanted to start this thread to continue that discussion when I come back.

Views: 70

Replies to This Discussion

HI LADIES HAVE ANY OF YOU GUYS CONSIDERED OR VISITED A TRICHOLOGIST? Dr. Linda Amerson,is a doctor of Trichology and world-renowned expert on hair and scalp disorders. CHECK OUT HER WEBSITE,

www.hairandscalpessentials.com/page/page/4443912.htm

I have been all through Dr. Emerson's site. I want to contact her about my excessive oily scalp & skin. My dermatologist seem as if she didn't know what to prescribed me.

Nicole, you're from the Texas area aren't you?

I'm curious to know how many here have been tested for Lupus, or has a family history of Lupus?
Interestingly, several years back I was unknowingly tested for Lupus, and wasn't aware until I later saw another Dr. who looking at my records told me she was sending me back for a follow-up to see if my "levels" had changed. When I asked her what levels she was referring to, that's when she told me the previous doctor wanted to rule out Lupus and the results were elevated but inconclusive.

The symptoms I was experiencing then were primarily lots of joint pain. (I don't remember what else was going on at the time). However, I did make an association with the degree of stress I was experiencing at my places of work each time.

I had the same testing done eight years ago, and then again, two years ago, Ms. E. "Elevated but inconclusive".....because of my alopecia, and elevated titers. I also have joint pain....and like you, I work in two very, very stressful environments with both my full time and part time job.

Hmm..I was tested for Lupus 5 years ago after the birth of my first son. When he passed away in the NICU the doctors ruled out Lupus and said his illness was due to premature delivery. Now I'm not so sure.

My condolences, Moonflower, on the loss of your precious son. An autoimmune disorder could have caused you to have a premature delivery.

In the area where I live (Central PA), only 20% of the population consists of people of color (African American, Native American, Asian, Black Latinos), and we have very few (less than a dozen) rheumatologists. Even fewer of those have any experience working with African-American patients. I was on a waiting list for three years to see the one rheumatologist in my area who has an EXCELLENT reputation in dealing with autoimmune disorders in women of color -- these disorders can cause lots of things to happen to our bodies -- I had uveitis, caused by my autoimmune disorder. Even my opthalmologist didn't pick that up.

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service