Replies to This Discussion

Permalink Reply by velvet on July 8, 2011 at 3:59pm

i am as open asmuch as i feel comfortable with it depends who it is and it is a very hard and scary thing to do xx btw bubbly 31 add me on fb x

Permalink Reply by bubbly31 on August 20, 2011 at 2:42pm

yeah i get what your saying only my parents and my twin sister know ive thought alot about admitting it to the closest of my friends but i never got around to being as comfortable. But the good thing is ive accepted it. i have alopecia areata and i recently just found baby hair on my head! so many people on alopecia world have so much courage and faith i was so surprised when i came to this site! and I definitely think your one of them. is your name velvet cooke on fb?

Permalink Reply by velvet on October 25, 2011 at 7:32pm

yh it is

Permalink Reply by MAT´S MOTHER on October 18, 2011 at 7:35am

MY SON IS A TEENAGER WHITH ALOPECIA. THIS TIME OF LIFE FOR ALL OF US IS VERY INTENSE WHITH UPS AND DOWNS, CHALLENGES, AND OALL SORTS OF THINGS. THAN YOU ADD TO ALL THIS ALOPECIA . FOR SURE AS A MOM I NEED HELP TO SUPPORT MY SON, BECAUSE I CAN GUESS HIS FEELINGS BUT ITS FAR AWAY FROM REALTY. HE IS THE ONLY ONE TO KWON DEEPLY WHAT HE IS GOING THROUGH!!!

Permalink Reply by loryn! on October 19, 2011 at 1:45pm

well i lost my hair in the middle of my freshman year, and my first reaction was to keep it a secret from everyone. in a matter of two weeks i had lost 90% of the hair on my head, and had to start wearing a wig. well it was my first wigs and i didn't really know how to style it or make it look good, so it looked really wiggy and everyone knew. so after being ridiculed for weeks i decided that i was done hiding and i posted a bald picture on facebook explaining my disease. that was really my way of showing everyone that talked about how gross i looked, that you were right, it was a wig, how awesome do you feel now? the immediate response was all very possitive, i got appology letters and words of encouragement. but someone decided it would be fun to create a fake facebook profile to tell me what they REALLY thought about my hairloss. i've been called everything, and it took me a while to except that this is what i look like. i'm homeschooled now, and it's a lot better. i lost lots of friends because i detached from everyone those first few weeks. i didn't want to talk to anyone, and i didn't want to leave my house. i lost a lot of people, but my true friends stayed, and through this disease i've made many more. i still have my days, but once i accepted myself, and told everyone about it, life has been easier. the anxiety of keeping the secret is all consuming, and i promise it's just easier to tell people. most people are more understanding than we think they are, there are still those few, but thats high school. i hope this helps. -LO.

Permalink Reply by velvet on October 25, 2011 at 7:33pm

thanks for sharing add me on facebook :) its the same name and u can chat to me whenever im on there as i am hardly on here xx

Permalink Reply by x3Awesome'TTx3 on October 19, 2011 at 3:22pm

I am a teenager with Alopecia & im in a new school , however I wear a wig & people at my new school are starting to realize that. I will soon reveal my battle with Alopecia.

Permalink Reply by velvet on October 25, 2011 at 7:34pm

its easier to come out with it at the start on my first day of college i had already told nearlly half the group and no one cared u feel more comfortable if u tell everyone

Permalink Reply by Eliza alisa abgail on October 19, 2011 at 3:31pm

Been there and done it. Never want to go back.

Permalink Reply by velvet on October 25, 2011 at 7:39pm

how old r u now x

Permalink Reply by Ashley on January 16, 2012 at 6:16pm

I have never wore a wig to school and I am in my sophomore year in highschool (: