Replies to This Discussion

Permalink Reply by shirley carole douglas on January 8, 2011 at 1:56pm

Hi danni
my 13year old granddaughter wears a Freedom Wig. Nothing can replace your own hair, but for her freedom vacuum wig is the next best thing. She does a lot of sports and swimming and has the security that it doesn't come off.
Everyone admires her hair although all her friends know she has alopecia, but she has the choice if she wants to tell anyone else.
Tracy is an agent who works for freedom she has alopecia herself and will travel to your house, I dont know if I'm allowed to give her telephone number on this site so if you want to PM I will give it to you.
regards

Shirley

Permalink Reply by shirley carole douglas on January 9, 2011 at 5:11am

Hi Dannii
PM means post message to own private box but I'm not sure where it is on this site. The number I have for Tracy is 01422 251064 or if you look on Freedom Wigs New Zealand website it gives you a list of UK agents.
Shirley

Permalink Reply by Rose Marie' on January 14, 2011 at 2:01pm

Hi

There are quite a few people that wear Freedom wigs in the Uk. If you wanted to chat to them I think it might be helpful to contact the IA's over in that part of the world (there are 4 in England and Scotland and 1 in Ireland). They will have clients that will be happy to pass on their experiences to you.

Go to www.freedomwigs.com then go to the 'contact us' page to find IA's emails and contact details. (I believe the two closest IA's to you would be Periwigs or Positively Hair).

There are also a few people on this site that wear freedom wigs. I see you have joined the group 'alopecians who have a freedom wig! (or are getting one' Created by Maya. This group is another good way to find out about Freedom hairpieces. Another good person to chat to would be Anna Fitzpatrick on here , she is a model and tv personality in NZ. She has been wearing Freedom hairpieces since she was 9 years old - she is now in her early twenties. She has a good knowledge and some lovely piccies.

I am happy to pass on my expertise around this type of hairpiece as well. My daughter has worn Freedom wigs for the last 8 years and I help people in NZ with this type of hairpiece. I have a very extensive knowledge and am happy to pass that on to you if you feel it would help.

Hugs

Rosy

Permalink Reply by dannii on January 14, 2011 at 4:18pm

Hi Rose Marie,

Thank you for all that information, that's very kind of you. I'm torn between bonding hair pieces on or should I shave the lot off and get a freedom wig? I will see if I can speak to others and see what they think and which they prefer. It is a hard decision to make as the top of my hair will be shaved off shortly for my piece to be taped on, or do I take the plunge and shave it all off and buy a freedom wig. My only other concern is that I will need a cheaper hairpiece to sleep in as I won't want my husband to see me without hair. (although he is very supportive) it's the way I feel.

Hugs to you x

Permalink Reply by Rose Marie' on January 14, 2011 at 5:14pm

Hi Dannii

This is such an emotionally draining decision for many. It was for me when I was looking for my daughter. (Big hugs for you). Just take your time and keep trying to sort out what you personally need to make a hairpiece work for you. It may or may not be a freedom hairpiece. It may or may not be a synthetic or bonded hairpiece. Do your best to write a list of your needs in order of priority (always remember the priorities may change as you become more comfortable with your hairloss). Then start working through the choices you have with hairpieces, ticking the boxes you need.

I also understand how you feel is very important to how comfortable you feel with your lovely husband and that's so ok. I'm going to pass on some personal thoughts on this and I hope they help. When my daughter lost her hair I couldn't have loved her less or more. I grieved her hairloss but my love of her didn't alter one iota. I would say that would be the same with your husband. He loves you and sees you in pain, he will totally take your lead as to how you want to deal with your hairloss. If you don't want to show I'm sure he will live with that status quo, as to make you uncomfortable would be horrible for him as well. The only thing that makes me sad about that particular choice is that you are locking him out of a very traumatic part of your life that I'm sure he would want to support you with. For me personally I would be so heartsore if my daughter didn't share this journey with me. It has not always been easy but to be pushed to one side by her would have broken my heart. Give it time and always remember this lovely man loves you - that means all of you. Trust him to love you like you love him. If the hairloss was happening to him, do you feel you would love him less?? I know you wouldn't - so trust him like you trust you.

Big Hugs for you and good luck with your choices.

Rosy

Permalink Reply by dannii on January 15, 2011 at 8:48am

Hi Rosy,

It so true what your saying regards shutting my husband out as you said, it would hurt you if your daughter did that. I know I am sooo lucky to have a fantastic supportive husband, but the truth is, its probably me who can't look at myself in the mirror with no hair. It is such a big shock and makes me feel ugly without hair. I admire these ladies who walk around bald and they are so beautiful, but I am not. I am average looking an without my hair I look y
uk! My life is on hold until I get my new hair, I don't want to go out without a hat on etc. Come the end of the month when my piece is ready I'll feel a lot better about things and start to feel lady like again.

You have been very kind and supportive and your daughter is so lucky to have you. Just can't wait for my first hairpiece to arrive and see how I get on with it and from there will decided on bonding or buying a freedom wig.

Many thanks and hugs to you

Dannii

Permalink Reply by Rose Marie' on January 15, 2011 at 3:36pm

Hi Dannii

I believe picking a hairpiece that you love will help and I wish you the very best with the hairpiece you have coming. I hope it works well for you and gives you yourself back. :)

I can also understand how the enforced change in appearance that alopecia foists on people is difficult to manage. You just keep knowing that you are the gorgeous woman you have always been, you are loved and loving and that's all you need to be. I remember my daughter saying similar things to me at the beginning of this crazy road with alopecia. It can take a wee while to know that it's ok and that you are going to be ok.

Hugs

Rosy

Permalink Reply by kyra on February 16, 2011 at 8:11am

Hi Danni,
I have had a freedom wig from Tracey. As it says below she has alopecia herself so she really understands what we want from a wig.
Hope this helps.

Warm Regards

Kyra

Permalink Reply by dannii on February 16, 2011 at 1:26pm

Hi Kyra,

I was given a number for Tracey, but it just rings, never any answer so I don't know if it is the correct number,

Thank you x

Permalink Reply by Rose Marie' on February 16, 2011 at 2:05pm

Hi Dannii

Maybe you do have the wrong number - I have called Tracey recently and had no problems getting hold of her.

I'll send you a private message with her number just in case it isn't right.

Rosy