Utah Alopecians

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Utah Alopecians

This is a group for Utahan's with alopecia.

Location: Utah
Members: 32
Latest Activity: Aug 10, 2018

Discussion Forum

Back in Utah

Started by Colene Anderson Dec 28, 2011. 0 Replies

parent of a 16 year old with alopecia

Started by Rainey Clark. Last reply by C. May 24, 2009. 1 Reply

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Comment by Amy on May 2, 2011 at 7:32pm
Nice to meet you Teri! My parents have a cabin in Woodland and we go to the Kamas Demolition Derby every 24th of July :) Would you recommend Dr. Kruegar? Was he thorough? I'm getting pretty discouraged with the whole Dr thing. I know that you can't believe all that you read on the internet, but I feel that some dr's are threatened by patients who try to educate themselves and ask questions. I appreciate the help!
Comment by Teri C on May 2, 2011 at 7:07pm
I am from Utah, just found this group and wanted to share. I found a Dr Gerald Krueger with the University of Utah Dermatology. He seemed to know what he was talking about. He has done work with the NAAF. I was on Immune suppressents which was working for awhile but unfortunatly am in the 30% that treatment doesn't seem to work. My hair started falling out again, So I quit the treatment it wasn't worth the risk to me. If anyone wants more info I'll be glad to share. The Dr. is very hard to get into quickly though. Also wondering if there is a support group in the Salt Lake area?
Comment by Lisa F and Chloe on April 28, 2011 at 10:32pm
The anthralin was very strong and irritated Chloes head. She looked like her scalp had been burned. The skin itched then peeled. She had to work up a tolerance to it. I can't imagine how it would affect you if even rogaine was irritating. I cant blame you for being leary about another med. And yes, life goes on, stay strong!
Comment by Amy on April 28, 2011 at 7:16pm
I have a neighbor who's daughter has AA and has loved the dr's up at primary's! I wish I had as much luck with adult doctors. The last dr I went to told me to go on propecia which is for men with MPB without ever doing a scalp biopsy. My sister had some spots of AA a couple of years ago, and I know it can be hereditary. I almost wish that my hair loss wasn't diffuse but a spot. I actually used the rogaine initially but it irritated my scalp so badly that it caused psoriasis, and contact dermatitus on my scalp. I am now going through the major sheds from getting off of it. This is why I am wary of trying another med. It could just speed up the hair loss. What a fun ride. oh well life goes on right? :) Thanks for your suggestions!!
Comment by Lisa F and Chloe on April 28, 2011 at 2:52pm
Chloe is seeing a pediatric dermatologist at Primary Childrens. We were referred by: Dr. Ivan Flint - Dermatologist - 1250 E 3900 S
He is the one that first diagnosed Chloe with Alopecia.
The pediatric dermo. also told us to use rogaine. I was furious and didn't like that at all. After a little research of my own and suggestions from mothers on CAP I asked the Dr. about squaric acid and anthralin. Within weeks of using anthralin Chloe had hair growth. I can't say 100% that it was the medicine that worked or just the crazy alopecia cycle. I do think it is worth asking about. I hope you are able to find a doctor that you are comfortable with.
Comment by Amy on April 27, 2011 at 11:44pm
Hi everyone! I live in Utah county. I have been suffering from chronic TE and can't seem to get a definitive diagnosis from a doctor. I have diffuse loss all over but more prominent on the back of my head and one side. Does anyone have a good doctor that they would recommend? One that diagnoses first then treats. I'm getting tired of being told to use rogaine :)I don't mind traveling. Its getting so thin that I feel like getting a wig will be coming soon. I am so impressed with everyone's positive attitudes and strength. I hope to get some of my own. Thanks for your help!
Comment by Cynthia Smith on April 16, 2011 at 1:21pm
Hi all, I'm the Salt Lake valley myself. It is good to know there are other people with alopecia here in Utah too. I started loosing my hair at the beginning of this year and have lost a good third of my hair already. Who knows where this journey will end.
Comment by Amber on March 14, 2011 at 3:42pm
Hey guys! I'm currently living in the Logan area. I just found alopecia world not to long ago and have just started learning my way around it. I was so excited to look at the groups and find one for Utah. I look forward to hopefully making some new friends :)
Comment by Lisa F and Chloe on March 10, 2010 at 4:42pm
My daughter Chloe, age 8, was just recently diagnosed with AA. I just found AW and have been amazed by the love and concern everyone has for each other. I look forward to getting to know others in Utah that have AA. I will share your stories my daughter, and am sure it will give her a boost of confidence.
Comment by Sara on March 1, 2010 at 1:11pm
Hi there... I will be moving back to the Salt Lake area in about two weeks (I am very excited!) I have been very involved with NAAF and the local support group (when Utah had one).
Would love to get to know more alopecians in Utah (as of right now, just me and my dad :)
 

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