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Comment by Dolly on May 19, 2016 at 1:32am

I spoke to my naturopath yesterday about the massive hairloss after increasing to a higher dose. He said not to worry, as this is common in the first 2 weeks. It's called herxing and entails that the body is detoxifying. I hope he's right.

Comment by Dolly on May 18, 2016 at 1:56am

That's so good hear! I never had pits/dents in my nails, but they are very brittle though. Maybe that will get better to. Since I started ldn, I don't need medication for my hayfever anymore.

Comment by pterese on May 18, 2016 at 12:29am

I would like to add that the tiny pits in my daughter's nails are now gone.  I know this is a sure sign her body is healing, since the pits and alopecia go hand in hand.  

Comment by pterese on May 16, 2016 at 8:57am

Yes.  Cancel the injections.  Steroids and LDN are not good partners.  Join Got Endorphins on FB.  Many users there have expert information and can go into detail about such things.

Comment by Dolly on May 16, 2016 at 2:11am

Hi Pterese, do you mean steroid injections? I have planned an appointment again, since my hairline is now moving backwards. Time is not on my side; the ldn helps for the hayfever so far, but my hairloss is in full motion:-(. Should I cancel the steroid injections?

Comment by pterese on May 15, 2016 at 9:25pm

I forgot to mention that we are in week 14.  I ramped her up slowly at .5 increments. Her shedding stopped and I am certain LDN saved her lashes and brows, as her hair was going very quickly.  Please feel free to share this group with other users.  I know of one in particular who started LND and is also having success.  :-)

Comment by pterese on May 15, 2016 at 8:49pm

4.5 is the correct dose for adults.  You will need to ramp up slowly.  .5 per week.   Also, do not mix with steroids.  They are counter-productive together.  I also give my daughter tumeric capsules each morning and white peony.  Both assist naturally with inflammation.  We are dairy free and almost gluten free.  Her diet is very healthy.  

Comment by pterese on May 15, 2016 at 8:40pm

I have added two photos of my seven year old daughter.  She is having success with LDN.  She takes liquid form at night.  There are absoltely zero side effects.  The baby blonde hairs are starting to strengthen and thicken toward the back.  It is a slow but steady process.  I am happy to share our LDN story and help others.  This is a drug that few doctors know about.  The reason is there is no profit margin.  BUT, it has been FDA approved since the late 80's and if you advocate, you will get your hands on it with the right dr.  You will need a compounding pharmacy.  The right pharmacy is imperative.  There is a lot of info online and plenty of youtube videos.  A good place to start is  https://www.ldnscience.org/

Comment by Dolly on May 3, 2016 at 2:11am

I have started a few days now on a very low dose (.5mg). I only had flu like symptoms, but it's getting better. I am still losing hair, but I'm aware it's a slow process. I've read that for most autoimmune diseases the starting dose is 1 to 1.5mg (except for hashi's and 2 other diseases). I'm thinking of increasing, since I don't suffer from bad side effects. Anyone wants to share their thoughts?

Comment by Dolly on April 15, 2016 at 5:42am

Just came back from derm. They will refer me to the University Medical Center, as supposedly they have some new treatments there for AA(??). I told them that I haven't found any new treatments on the internet, apart from Xeljanz, which won't be approved in the EU on the short term. I feel like I know more then most docters. They weren't familiar with LDN and not interested in all of my research at all:-(. So frustrating! Luckily, I was prepared for this scenario and made an appt with another company that does have experience with LDN (however, they are an 'alternative medical center'- all costs will be on my account, but I am willing to take this). They told me that I can have a prescription on the first visit on Wednesday. Keep you posted!

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