Alopecia World
Frontal Fibrosing Alopecia
-
Get Ahead of Hairloss Event plus new information on FFA
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who is my dermatologist. She is a lovely lady and is…
-
Food Allergy Testing question
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back negative for all foods.I notice a lot of scalp itching…
-
CARF Conference 2018 Notes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are friendly and eager to help each of us. The doctors…
-
Botox and FFA
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria Piraccini.This is a very small study but seems to…
-
Trying a new approach with CBD oil...
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being found to do wonders for many types of inflammation.…
-
Man with FFA. New member.
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first noted thinning to the outside edges of my eyebrows 4…
-
Dermatologists who specialize in alopecia?
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke, the Mayo Clinic, Stanford, Yale, University of…
-
FFA and common beauty aid ingredients
Hi,I am having phototherapy treatments on my hairline and eyebrows and I am seeing improvement (inflammation/red follicles clearing and some hair growth). I am seen by a local dermatologist whom I love. She is an advocate for her patients. It was difficult getting insurance approval. Last month…
-
Regarding my successful trial with cannabis oil tincures!
I am letting you all know of my trial of using cannabis oil tincture on my hairline for the past 4 months. I was diagnosed with FFA about 5 years ago. I have used finasteride and clobetasol as well as tried steroid injections and doxycycline. I also went on an autoimmune protocol diet for almost a…
-
IPL Treatment (Intense pulsed light therapy)
I am considering IPL treatment for age related spots and rosacea on my face but I am wondering if anyone has tried this and if it has had negative effects on either their FFA or LPP? I certainly don’t want to risk triggering a flareup. Also, if anyone has had IPL treatments, were you happy with the…
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.