Carmen,
Thank you for starting up this group! The only other Utah Alopcian I know is Shannon Cox. I look forward to getting to know you and others who live in Utah.
My daughter is only 8 but I would LOVE for her to meet some BaldGirls! Is it an adult only thing? If so, I'd love to host a BaldKids day here in Utah! So please pass me on to anyone kids here in Utah that you know of.
Hello, My name is Debby, I live in Salt Lake (Cottonwood Hts). Over the summer,I noticed my hair didn't look right in the back and in August I mentioned it to my hair dresser and he showed me why. I about fell over! I had no idea! I had a bald spot the size of a fifty cent piece just above the bottom hair line on the back of my head. Now, I think it's about 2" in diameter. I have been to a dermatolgist twice and have had several injections in the bald spot both times. I feel that I am still losing hair and that more spots may be starting. I am starting to panic just a bit. I am beginning to feel that before too long I will have very little if any hair on the back of my head. I don't know what to do. I would appreciate any suggestions for wigs/hairpieces for the short-term, treatments for the long-term.
Thanks
Debby
When I had patches that I needed to cover I would use human hair clip-ins. You can often find these at a beauty supply store. Long term treatments? I don't have any that I could recommend.
I live in Riverdale and would be happy to talk to you any time. You can leave messages here or can e-mail me at shannon @ darkpenguin . com
Thanks Shannon. I appreciate the tip. Are there doctors other than dermatologist that specialize or treat alopecia? I have been to the dermatologist but my daughter thinks I should see an internist. I'm not sure that I want to be running to different doctors just to be told that they don't know.
I think an internist could be valuable to make sure that you don't have any other auto-immune issues going on. Auto-immune diseases tend to run in packs. One common problem that those of us with alopecia have is thyroid disease. Also, some feel that their alopecia is affected by their hormones. An internist could do a work up to rule out any other problems that might affect your hair loss. But for the alopecia itself, a dermatologist is the one that would treat it. That is, as far as western medicine is concerned. I do a lot of alternative medicine now and have found a lot of relief for my other auto-immune concerns (especially my colitis) but, as you can see, my hair has not regrown.
Shannon
Hi there... I will be moving back to the Salt Lake area in about two weeks (I am very excited!) I have been very involved with NAAF and the local support group (when Utah had one).
Would love to get to know more alopecians in Utah (as of right now, just me and my dad :)
My daughter Chloe, age 8, was just recently diagnosed with AA. I just found AW and have been amazed by the love and concern everyone has for each other. I look forward to getting to know others in Utah that have AA. I will share your stories my daughter, and am sure it will give her a boost of confidence.
Hey guys! I'm currently living in the Logan area. I just found alopecia world not to long ago and have just started learning my way around it. I was so excited to look at the groups and find one for Utah. I look forward to hopefully making some new friends :)
Hi all, I'm the Salt Lake valley myself. It is good to know there are other people with alopecia here in Utah too. I started loosing my hair at the beginning of this year and have lost a good third of my hair already. Who knows where this journey will end.
Hi everyone! I live in Utah county. I have been suffering from chronic TE and can't seem to get a definitive diagnosis from a doctor. I have diffuse loss all over but more prominent on the back of my head and one side. Does anyone have a good doctor that they would recommend? One that diagnoses first then treats. I'm getting tired of being told to use rogaine :)I don't mind traveling. Its getting so thin that I feel like getting a wig will be coming soon. I am so impressed with everyone's positive attitudes and strength. I hope to get some of my own. Thanks for your help!
Chloe is seeing a pediatric dermatologist at Primary Childrens. We were referred by: Dr. Ivan Flint - Dermatologist - 1250 E 3900 S
He is the one that first diagnosed Chloe with Alopecia.
The pediatric dermo. also told us to use rogaine. I was furious and didn't like that at all. After a little research of my own and suggestions from mothers on CAP I asked the Dr. about squaric acid and anthralin. Within weeks of using anthralin Chloe had hair growth. I can't say 100% that it was the medicine that worked or just the crazy alopecia cycle. I do think it is worth asking about. I hope you are able to find a doctor that you are comfortable with.
I have a neighbor who's daughter has AA and has loved the dr's up at primary's! I wish I had as much luck with adult doctors. The last dr I went to told me to go on propecia which is for men with MPB without ever doing a scalp biopsy. My sister had some spots of AA a couple of years ago, and I know it can be hereditary. I almost wish that my hair loss wasn't diffuse but a spot. I actually used the rogaine initially but it irritated my scalp so badly that it caused psoriasis, and contact dermatitus on my scalp. I am now going through the major sheds from getting off of it. This is why I am wary of trying another med. It could just speed up the hair loss. What a fun ride. oh well life goes on right? :) Thanks for your suggestions!!
The anthralin was very strong and irritated Chloes head. She looked like her scalp had been burned. The skin itched then peeled. She had to work up a tolerance to it. I can't imagine how it would affect you if even rogaine was irritating. I cant blame you for being leary about another med. And yes, life goes on, stay strong!
I am from Utah, just found this group and wanted to share. I found a Dr Gerald Krueger with the University of Utah Dermatology. He seemed to know what he was talking about. He has done work with the NAAF. I was on Immune suppressents which was working for awhile but unfortunatly am in the 30% that treatment doesn't seem to work. My hair started falling out again, So I quit the treatment it wasn't worth the risk to me. If anyone wants more info I'll be glad to share. The Dr. is very hard to get into quickly though. Also wondering if there is a support group in the Salt Lake area?
Nice to meet you Teri! My parents have a cabin in Woodland and we go to the Kamas Demolition Derby every 24th of July :) Would you recommend Dr. Kruegar? Was he thorough? I'm getting pretty discouraged with the whole Dr thing. I know that you can't believe all that you read on the internet, but I feel that some dr's are threatened by patients who try to educate themselves and ask questions. I appreciate the help!
I went to Dr. Krueger for a second opinion. Glad I went, he helped me understand alopecia better and my options. My primary dermatologist is Dr. Panko at Taylorsville Clinic. She's sweet. Neither seem to mind questions. We've come up with new ones for them each time I went.
I will have to make an appt with him. Thanks Cynthia. I read your info and I love to read and stitch myself! I love to go to pineneedles in Gardener Village, That store is danger for me :) I find that i am reading and stitching a lot to escape focusing on my hair loss.Once the weather stays nicer I will be out in my garden venting.There are so many brave women here. I appreciate all of your suggestions. Thanks!
Yes i do recommend Dr. Krueger. He gave me several options. You have to have the 1st appointment with him at the U and he is a couple of months out. I live in Woodland and work in Kamas.
Well, I might as well make the appt now if I have to wait a little while! Thanks. My parents cabin is in the Bar x ranch group. It is so beautiful there! You are so lucky. I can't believe how much snow was still there, and coming down just a few weeks ago. Thanks for the help!
Hey everyone, just reading through some of your comments. I have AA, my hairdresser and I discovered my first patch of missing hair about a year and a half ago. It is pretty much all gone now. I also lost the eye lashes one eye lid. I work at the U and have been to Dr. Krueger. Only the first appointment takes a while to get in, once you are established as a patient you can get in much faster. He is said to be an expert although he really could not help me. I have had many many steroid injections but they did nothing to stop the hair loss. I have not heard of squaric acid and anthralin. Is this something new?
I don't know if squaric acid and anthralin are new. I Googled both and found the recommended use is for those suffering from AA. It seems the anthralin is a little easier to find in Utah. It is time consuming but not as invasive or painful as the injections seem to be. The only side effect we saw was a red tender head that itched when she got hot. Both were tolerable for the then 8 year old. I'm sure it isn't for everyone but it may be worth asking about.
I won't be able to make it to the NAAF conference this time. I've never been able to go but I plan to someday. I think it would be great!! Good luck. Travel safe :)
I know that in the next couple of months I am going to need to get a wig. I am gearing up for this and was wondering if any of you have an wig shops you would recommend. It looks like many people order online but that makes me nervous and I don't want to waste my money... so any suggestions would be appreciated. Thanks!!! :)
I go to Headcovers on 3300 south in Salt Lake. Joni and Janet are great!!. Joni cuts wigs also and does custom wigs. I will pick my first custom up tomorrow.. so excited!
Thanks for the recommendations. I hope your wig turns out great! Just a quick question, if any of you work out, what do you do then? Just wear hats or scarves? One girl said she wears a wig working out. I am such a sweater that i don't think that will work for me...Just thought I would ask. Thanks!
I do work out alot. I went to the perl izumi outlet and they have hats that are tight with elastic in the back and no hole. that is what I wear. You can tell i don't have hair but it keeps the sweat out of my eyes and doesn't move!
its great reading everyones comments! My daughter 5 years old has alopecia universalis and was diagnosed when she was 3. I know alot of you have been talking about NAAF i encourage you to check into alopeciapalooza!!! we went last year with the family and it was amazing! you met lots of alopecians, had TONS of fun and became one big happy family!!!! if you go on facebook and type in alopeciapalooza you will find it :) we are going again this next august and I dont know how we could ever miss it again!
Hello fellow Utahns! I just started the process of planning a 5k for raising awareness for Alopecia here in Utah sometime in September. If you are interested in helping in anyway please let me know I would love some volunteers!
ALLLL ALOPECIANS!!!!! We are holding a Alopecia awareness 5K in Midway Utah June 29th 2013 for more information please contact Colene Anderson at coleneandersonphotography@hotmail.com hope to see you there!
The info is now set up! click the link to take you to facebook where I have an events set up for our race also in the description is a link to where you can sign up to join us! Anyone WITH alopecia is free and needs to just let me know they are coming and there T shirt size. All other people need to sign up and you can even start a "team" for your favorite alopecian :) Hope to see you there! Fun activities to follow the race https://www.facebook.com/events/345574685547804/
I saw DR. Kruegar, he is at the u of u. He knows a lot but is very old school. You have to have thick skin to see him. His bedside manner is very lacking. There are many that Dr's that dabble in this area. I have been really tempted to find a dr out of state. Find one that does tests and doesn't just hand you a prescription for rogaine or propecia. Good luck!!
Kathy
Thank you for starting up this group! The only other Utah Alopcian I know is Shannon Cox. I look forward to getting to know you and others who live in Utah.
Thanks!
Kathy
Apr 21, 2009
Jenn
Bald Girls Rock,
Jenn
Apr 22, 2009
Shannon
Apr 23, 2009
Jenn
May 3, 2009
Kathy
May 4, 2009
Shannon
May 4, 2009
KIM - Jessica's Mom
Jun 17, 2009
Debby Shill
Thanks
Debby
Oct 31, 2009
Shannon
When I had patches that I needed to cover I would use human hair clip-ins. You can often find these at a beauty supply store. Long term treatments? I don't have any that I could recommend.
I live in Riverdale and would be happy to talk to you any time. You can leave messages here or can e-mail me at shannon @ darkpenguin . com
Nov 1, 2009
Debby Shill
Thanks again
Debby
Nov 1, 2009
Shannon
Shannon
Nov 1, 2009
Sara
Would love to get to know more alopecians in Utah (as of right now, just me and my dad :)
Mar 1, 2010
Lisa F and Chloe
Mar 10, 2010
Amber
Mar 14, 2011
Cynthia Smith
Apr 16, 2011
Amy
Apr 27, 2011
Lisa F and Chloe
He is the one that first diagnosed Chloe with Alopecia.
The pediatric dermo. also told us to use rogaine. I was furious and didn't like that at all. After a little research of my own and suggestions from mothers on CAP I asked the Dr. about squaric acid and anthralin. Within weeks of using anthralin Chloe had hair growth. I can't say 100% that it was the medicine that worked or just the crazy alopecia cycle. I do think it is worth asking about. I hope you are able to find a doctor that you are comfortable with.
Apr 28, 2011
Amy
Apr 28, 2011
Lisa F and Chloe
Apr 28, 2011
Teri C
May 2, 2011
Amy
May 2, 2011
Cynthia Smith
May 2, 2011
Amy
May 2, 2011
Teri C
May 2, 2011
Amy
May 3, 2011
Debby Shill
May 5, 2011
Lisa F and Chloe
May 5, 2011
Sara
May 12, 2011
Amber
May 29, 2011
Amy
Jul 4, 2011
Cynthia Smith
Jul 5, 2011
Amy
Jul 8, 2011
Teri C
Jul 8, 2011
Cynthia Smith
Jul 8, 2011
Amy
Jul 8, 2011
Teri C
Jul 8, 2011
Em
Jul 8, 2011
Em
Jul 8, 2011
Colene Anderson
its great reading everyones comments! My daughter 5 years old has alopecia universalis and was diagnosed when she was 3. I know alot of you have been talking about NAAF i encourage you to check into alopeciapalooza!!! we went last year with the family and it was amazing! you met lots of alopecians, had TONS of fun and became one big happy family!!!! if you go on facebook and type in alopeciapalooza you will find it :) we are going again this next august and I dont know how we could ever miss it again!
Dec 28, 2011
Gina
Hello fellow Utahns!
I just started the process of planning a 5k for raising awareness for Alopecia here in Utah sometime in September. If you are interested in helping in anyway please let me know I would love some volunteers!
Thanks!
Gina
May 15, 2012
Colene Anderson
ALLLL ALOPECIANS!!!!! We are holding a Alopecia awareness 5K in Midway Utah June 29th 2013 for more information please contact Colene Anderson at coleneandersonphotography@hotmail.com
hope to see you there!
Jan 25, 2013
Colene Anderson
Jan 25, 2013
Colene Anderson
The info is now set up! click the link to take you to facebook where I have an events set up for our race also in the description is a link to where you can sign up to join us! Anyone WITH alopecia is free and needs to just let me know they are coming and there T shirt size. All other people need to sign up and you can even start a "team" for your favorite alopecian :) Hope to see you there! Fun activities to follow the race https://www.facebook.com/events/345574685547804/
Mar 6, 2013
Amy
I saw DR. Kruegar, he is at the u of u. He knows a lot but is very old school. You have to have thick skin to see him. His bedside manner is very lacking. There are many that Dr's that dabble in this area. I have been really tempted to find a dr out of state. Find one that does tests and doesn't just hand you a prescription for rogaine or propecia. Good luck!!
Nov 13, 2013
Teri C
I am looking for someone in the Salt Lake City area that does eyebrow tatoos using the feather technique.
May 29, 2014
Rob
Jun 13, 2014