Hi everyone..Im Bob..Im 54 and single..Ive had Alopecia since I was 15 years old..Its been on and off all my life..It turned out to be a spiritual journey,allowing me to look inward at the real me,and my spirit,which has led me to many great things.Of course that didnt happen overnight..I had plenty of mornings,when I'd wake up and look in the mirror,and say..WHY ME !!!".I did that a lot for at least 3 years,.Its not easy to feel normal with AA..Especially for women..I say.."DEFINE NORMAL"..Anyway,Ive had AA for 35+ years,and I still dont like it.,but truly feel blessed to the things I learned by having AA...I think Alopecians are special people..They usually just glow in a unique way..Anyway,to all my fellow Alopecians,know I love you all,and may you find peace in you own skin..It takes time,but hang in there,and if anybody would like to chat,or seek advise,Im not the smartest,or the dumbest,but Id love to help if I can..So just who's out there anyway?? Maybe we should have a dating section here in AW??
Ps..I'd love to be friends with anyone seeking a friend,so hit me with a request,and I'll be here for you anytime you need..TX
Cheryl...You have enough "GLOW" for any 10 women...Let it shine,let it shine.let it shine...Its hard to miss..Who needs hair?? And that smile is as contaigeous as a forest fire..Your a true pearl..No doubt...Hey,thanks again for sending me a welcome note..Big hugs..Bob : )
Hi Bob, what a nice greeting for me this morning! Its very nice to "meet" you! You're fortunate to be down there in Folsom CA, I was lucky to CA last year and LOVED it! Have a great day new friend, keep smiling!
Thank yor for your welcome and also for wanting to be friends with me. I,ve just sent you a request. It is a wonderfull day here in Stockholm. Every one seemes to bee out in the rare precious sunshine. Best regards M
Hi, I'm new to the site also. Everyone here is very friendly. It's nice to talk with someone that is going through the same thing I am. I've had AA since shortly after birth. I'd love to chat and get to know someone who can realte.
Denise
Hi again my new friend, I hope you had a nice day. If my english is to silly, dont hesitate to correct me. I´ll only be pleased. It´s more than 25 years seans I hade any education. My spelling program is in sweedish. I think its about time to cach up with lots of practice! I just came home from work after a plesant day at the theatre. I,ve tryed 15 new shaped wigs on the ballet in the musical wich Im doing make up design for "Hedwig and the angry inch". I work at Stockholms city theatre. It has been my most usual emloyer for over 20 years. I also did the wigs for Mamma Mia in Stockholm and I´m also glad to be designing wigs for many sweedish films this year. Im lucky to have a job in this tuff business. I never wear wigs. But I make lots of them. Have a Nice Week end. M
Hi, How was your day? Mine went great. I work at a school for children with severe behavior problems. I work with 7th/8th grade students. Iowa's doing ok, cool and rainy today. I grew up in San Jose, CA I left there when I was 19. I miss the weather but not the earthquakes :) I have 2 sons my oldest will be 19 on the 9th,my youngest will be 15 in Sept. It really makes me feel old. Well I hope your day went well. Denise
Thanks for the friend request! You are a very kind person. Keep up the insiprational pep talks! I know I need them now and then. Take care, and God bless. Sarah
Hello, so you like old beautyful things. I buy all sorts of antiques. Once I found a folklore kostume, I´m wearing it tonight on a big birthday party. (I have to find myself a new dictionary, I can not find the fitting words) Yes I,m lycky to have a job that makes me feel good. But I always work to much! So long M
Hi Bob, Thanks for the add. I agree with you about the acceptance thing. I had only lost one side of my hair in the back of my head when I was 11, and back than they didn't even have a name for it. so i wore a pony tail for 4 yrs till it grow back. Never thought about it again till I had my son and he lost all of his hair at 3 yrs. old. Boy it was so tough. But going through that and making him the secure and confident about himself and all the stuff it took to get him there, has made me able to accept my new bout with this. Which has turned into AU this time. I don't even shave my head anymore.I lost all of my hair this pasted Jan. It is weird cause my hair started to fall out right when or around the time I was diagnosed with thyroid Hastimoto's. The Doctor told me once one autoimmune disease you can get several. But I am dealing very well thanks to my son. Who is my hero with this disease!
Well sorry so long . But this is such a great place to share. Thanks for being a friend! Have a great Sunday!
My Sunday has been great! I went to see Santana down on Beale Street last night and slept in til 3pm today! Made some awesome spaghetti for dinner tonight and tomorrow, which made me happy (I just hate the cleanup!) How has your Sunday been?
Santana..I love him..Hes definitly one of a kind..Self taught...Im also self taught,so nobody else plays the keys like me..Im not sure if thats good..LOL..JK..My Sunday has been a diffulcult one..I have a older brother whos starting to loose it mentally,and I recentally have been there to help him recover,and i thought he was back on track,but today he called,and was saying things that made no sense,like people on his roof etc...Its sad..Plus he's a 3 hour drive to help him,and I have 2 hip replacements and a crushed disc,so its not easy..Im just gonna have to buck up,and see if i can help..Again..If youd like to pray for him,his name is Jeff,in Nevada City,Ca..Pray for sanity..Thanks YoKasta..Your also in my prayers..We'll make it,,Ive been through harder things than this,and Im still kickin..Im not a quitter so,here we go again,going down the only road Ive ever known..I love that song..Thanks for your response..Im good..Bob
Hi Bob, Hello to you also... I hope you have a GREAT Tuesday! I am getting real excited cause i am going to go tomorrow to pick my son up from college. He is 7 hours away.
I read your comment you were saying about your brother, I am sorry to hear of his problem... I have a sister with a lot of that stuff. So I get your pain with that. Just remember to keep yourself well, you can only do so much and the rest is up to them or medical professional.I will most certainly pray for your brother to get well and also for you to have the strength to help him.
Sorry to hear about your brother, but I know what your going through. Alot of the children I work with are mentaly ill some severly, so I am very aware of the good and bad times that come with it. It can be very hard and stressfull. I've been doing that for nine years and the best thing I can recommend is have alot of patience and don't take anything personally. To bad about the caddy, i'd offer help but your a little far away :) I'm into muscle cars myself. I would love to get my hands on a 64 n' 1/2 Mustang or 69 Camero. But the chances of finding a decent one in Iowa is slim, they're all rusted out. Well I need to go make dinner....Denise
Hey Bob!
I went to www.playlist.com and created an account. Once I did that then I created a playlist and checked the option to get the code to embed it into another site. Once I did that I copied and pasted the code into my Alopecia World profile and voila! Before you get the code, be sure to check the option to auto-play and choose the color you want. You can create as many playlists as you want and add each one to your page, but you can only have 100 songs per playlist. Or on the Alopecia World page itself, you can add music from your own computer to play. Just look under your personal information right above your groups and click on the link to add music, and add the music like you would add your pictures. Let me know how it turns out!
Hi, How was your day? Mine went pretty well. I have a great aunt with dementia, do they think that's what's wrong with your brother? It can get pretty scary with her. If she takes her meds it's not so bad but they don't always work perfectly and sometimes she forgets. She now lives in semi-assisted living. Denise
Bob,
Thanks for the welcome. So many friendly people. I think so many of us feel we've had a very spiritual experience living through and with AA. For me it's provided an opportunity to see what is truly important in life. Now that I've found this web site, I wish I were going to the NAAF conference this year and could, perhaps, meet some of these people. Are you going to it?
Hi, Thats great news. I hope it continues. Today I'm not doing so great. I left work early cause I wasn't feeling very well. The weather is awsome outside and i'm stuck inside sick :(. I hope your day is better than mine.
Denise
I hope you have a great time with your son. I have a son too plus two grandchildren. I spent Mother's Day with my son and parents. It was a wonderful time. My granddaughter and her mom have been growing their hair for almost a year to donate to Locks of Love. They're getting it cut next month. I'm lucky enough to to with them for "the event."
Where is Folsom, CA? I've been to California a couple times and loved it.
Im for the moment unemployed. Getting my new job in july.
Yes, it was hard for me in the beginning dealing with my AA. I was a young teenager and popular with the girls =) But now ive learned living with it. How was it for you?
Hi Bob, Thank you for the Mother's day wish! How are you doing? I hope things are getting better on your end... I am very content right now having my son home. He is a pleasure to have around! Hope you stay well
Hi Bob, Thanks for your little text.... I have been in California last year... in lake tahoo..... skiing... its was so wunderfull.... sorry for my english...... Yes i'm a new member..... i was looking for people having same thing as me.... and i find that site... i think it is a great place too...... i planning to go to the conference in june..... to meet people like me! are you going to be there ? have a nice day !
Yes, I am new.. :) Thank you for welcoming me!!
I have lived in Folsom since August 2000, I looove it here!!
Its soo wonderful! Right by the lake, close to San Francisco and the mountains to go skiing.. Its a Terrific Place!!!
My favorite place to eat here is Haceinda..Yummy!!! Do you have any favorite places here??
I know I was talking to my grandma & mom today about it.. They think its a great idea too!!!! I will keep you posted.. And I would love to hear the song..
Hi Bob, How are you doing Thank you for the info i will check it out. But I am so skeptical of all these things they say will help. The derm. Dr. gave me the injections of kenalog , I really didn't want them but she insisted on me getting them. So it caused my cortisol level to drop severely. Which created all sorts of different problems from my levels being so low. It Took a while for ando Dr. to figure out what was wrong with me. He thought I had Addison's so it was a scare until he realized it was the the steroid shots causing my levels to drop. So with that in mind you can understand my skepticism.
How is your son doing? I forgot if you said he was in college?
My son as I told you is home for the summer and he is working at my brothers hardware store for the summer.
Hi Bob! Really appreciate your positive comment. I am happy to have so many supportive friends here. I read some of the members' stories and was shocked that most of them have AA for more than 10 years. Seriously, i didn't know about that. But I am glad to meet people like you who's positive and learn to love yourself with or without hair.
I'll try to overcome the depressions. How do you accept this disease in the 1st 3 years? Any tips? Take care and keep in touch
Hi Bob! What a nice warm welcome! Like you, I’ve also had AA for 35 years, and what a journey it’s been….I hope you will check out my YouTube channel and leave a comment to let me know what you think!
Thanks again!
Thanks for your suggestion Bob! You're so kind and helpful. I just went to see the dr recently and he says my condition had worsen. its AU now instead of AA. But i didn't take any shots cos i reacted badly to the shots. I told him i just wanna leave it that way and see what happens.
3mee is not my true name. My true name is Samantha Wong. I stay in Malaysia. I took the photo before I got AA. After that, I dare not take photos anymore. My new look? Minus the hair and eyebrow and hey presto - Its a new me! So I rarely go out to meet people nowadays. I only meet up with my best friends and family. That's why I am not in any kind of relationship.
I shaved my hair half year ago and bought myself a wig. I work in the concrete industry and its too hot and dusty-so the wig don't work. I took off the wig and everybody started to give me funny looks. I think the people in Malaysia is more conservative. The guys don't like bald women cos baldies seems to look more daring. Eversince, I lead a lonely life - go to work and home. Once in a while, i go back to my parent's house. But I promise myself i'll stay strong and overcome this disease. I am glad that met so many supportive people here. You guys may stay far, far away but every words that i wrote in here actually comes from the bottom of my heart. I never tell my family and friends how I feel. I keep it all to myself cos i don't want them to get worried. Whenever I am sad, I ll close myself up in the room and cry my heart out.
You are soo cute!! Thank you for trying to help with a name...
I think I thought of a catchy name.. Stay tuned
Yea, I did some advertising but, I have a Full Time job. I just do this on the side for fun.
I have had tons of gals ask to model, and all they want is the clothes they model in for payment. Which I think is pretty good deal! Dont ya??
But, I kinda wanna keep it simple for a bit. I just enjoy going to LA and getting able to see the up coming clothing. Also, another perk, I get to keep some for myself :)
Hey Bob!
I had to take a hiatus from posting for a few days, and I'm off to Nashville again for the holiday, so I'm as busy as ever! I will definitely be posting a lot this weekend, because I have a WHOLE lot of ground to cover!!! Summer has officially come to Tennessee, 80+ degree days (with the humidity from the Mississippi River coming in and the Tennessee River too, that equals a heat index of 90+ degrees, and we'll be in the 90's all week next week, so that means 100+ degree heat indices all summer long!!! I'll talk more to you this weekend.
Hey there, I'm all good now. I've just been really busy. It's going to be a busy week my sister and her family are visiting from MO. I haven't seen them in awhile so it will be nice. Well I hope evereything has been going good for you and your brother. Denise
Hi Bob hey I'm sorry I didn't reply to you, got busy and forgot, sorry. Yeah this is a good site and like you i have lived with this condition for years but it's good to know I'm not alone. Hope everything is good for you, Donna x
By the way, thank you so much for introducing yourself and taking the time to check out my story. It’s always nice to hear from like-minded people who have been able to find peace with AA. It is my hope to spread messages like these to other people who “suffer” with the issue, so that we can hopefully bring enlightenment and hope to those who need it most. Good work, keep it up and keep in touch!
thanks! I don't let it bother me. I've had AA since i was little so i grew up not having hair. I don't know any other way to live so i guess it was easier for me, but I don't know. haha
Bob Hershberger
May 1, 2008
kyra
May 1, 2008
Carol
I love how you say alopecians "glow". IT'S SO TRUE! :)
May 1, 2008
Orbit
May 1, 2008
Margareta Marcks von Würtemberg
May 1, 2008
Denise
Denise
May 1, 2008
Joni
Joni
May 2, 2008
Carol
May 2, 2008
Ev
May 2, 2008
Margareta Marcks von Würtemberg
May 2, 2008
Denise
May 2, 2008
sgomez
May 3, 2008
Bob Hershberger
May 3, 2008
Margareta Marcks von Würtemberg
May 3, 2008
Maureen
Hope you have a great weekend.
Maureen :)
May 3, 2008
Maureen
Well sorry so long . But this is such a great place to share. Thanks for being a friend! Have a great Sunday!
Maureen :)
May 4, 2008
kastababy
My Sunday has been great! I went to see Santana down on Beale Street last night and slept in til 3pm today! Made some awesome spaghetti for dinner tonight and tomorrow, which made me happy (I just hate the cleanup!) How has your Sunday been?
May 4, 2008
Bob Hershberger
May 5, 2008
Denise
May 5, 2008
Maureen
I read your comment you were saying about your brother, I am sorry to hear of his problem... I have a sister with a lot of that stuff. So I get your pain with that. Just remember to keep yourself well, you can only do so much and the rest is up to them or medical professional.I will most certainly pray for your brother to get well and also for you to have the strength to help him.
Maureen :)
May 6, 2008
Denise
May 6, 2008
kastababy
I went to www.playlist.com and created an account. Once I did that then I created a playlist and checked the option to get the code to embed it into another site. Once I did that I copied and pasted the code into my Alopecia World profile and voila! Before you get the code, be sure to check the option to auto-play and choose the color you want. You can create as many playlists as you want and add each one to your page, but you can only have 100 songs per playlist. Or on the Alopecia World page itself, you can add music from your own computer to play. Just look under your personal information right above your groups and click on the link to add music, and add the music like you would add your pictures. Let me know how it turns out!
May 6, 2008
Denise
May 7, 2008
Janet
Thanks for the welcome. So many friendly people. I think so many of us feel we've had a very spiritual experience living through and with AA. For me it's provided an opportunity to see what is truly important in life. Now that I've found this web site, I wish I were going to the NAAF conference this year and could, perhaps, meet some of these people. Are you going to it?
May 9, 2008
Denise
Denise
May 9, 2008
Roger
How are you doing?
Roger.
May 11, 2008
Janet
Where is Folsom, CA? I've been to California a couple times and loved it.
May 12, 2008
Roger
Im for the moment unemployed. Getting my new job in july.
Yes, it was hard for me in the beginning dealing with my AA. I was a young teenager and popular with the girls =) But now ive learned living with it. How was it for you?
Roger.
May 13, 2008
Roger
May 13, 2008
Maureen
Maureen
May 13, 2008
Denise
May 13, 2008
Carol
Thank you! I'm nearly overwhelmed by the response I've been getting from the article. How have you been doing?
May 14, 2008
Brigitte
May 14, 2008
Jennifer
May 16, 2008
Zoey
May 19, 2008
Zoey
I have lived in Folsom since August 2000, I looove it here!!
Its soo wonderful! Right by the lake, close to San Francisco and the mountains to go skiing.. Its a Terrific Place!!!
My favorite place to eat here is Haceinda..Yummy!!! Do you have any favorite places here??
May 20, 2008
Zoey
I know I was talking to my grandma & mom today about it.. They think its a great idea too!!!! I will keep you posted.. And I would love to hear the song..
May 21, 2008
Maureen
How is your son doing? I forgot if you said he was in college?
My son as I told you is home for the summer and he is working at my brothers hardware store for the summer.
Well have a wonderful Wednesday!
Maureen
May 21, 2008
3mee
I'll try to overcome the depressions. How do you accept this disease in the 1st 3 years? Any tips? Take care and keep in touch
May 21, 2008
Cheryl, Co-founder
May 21, 2008
Elline Surianello
Thanks again!
May 22, 2008
3mee
3mee is not my true name. My true name is Samantha Wong. I stay in Malaysia. I took the photo before I got AA. After that, I dare not take photos anymore. My new look? Minus the hair and eyebrow and hey presto - Its a new me! So I rarely go out to meet people nowadays. I only meet up with my best friends and family. That's why I am not in any kind of relationship.
I shaved my hair half year ago and bought myself a wig. I work in the concrete industry and its too hot and dusty-so the wig don't work. I took off the wig and everybody started to give me funny looks. I think the people in Malaysia is more conservative. The guys don't like bald women cos baldies seems to look more daring. Eversince, I lead a lonely life - go to work and home. Once in a while, i go back to my parent's house. But I promise myself i'll stay strong and overcome this disease. I am glad that met so many supportive people here. You guys may stay far, far away but every words that i wrote in here actually comes from the bottom of my heart. I never tell my family and friends how I feel. I keep it all to myself cos i don't want them to get worried. Whenever I am sad, I ll close myself up in the room and cry my heart out.
May 23, 2008
Zoey
I think I thought of a catchy name.. Stay tuned
Yea, I did some advertising but, I have a Full Time job. I just do this on the side for fun.
I have had tons of gals ask to model, and all they want is the clothes they model in for payment. Which I think is pretty good deal! Dont ya??
But, I kinda wanna keep it simple for a bit. I just enjoy going to LA and getting able to see the up coming clothing. Also, another perk, I get to keep some for myself :)
May 23, 2008
kastababy
I had to take a hiatus from posting for a few days, and I'm off to Nashville again for the holiday, so I'm as busy as ever! I will definitely be posting a lot this weekend, because I have a WHOLE lot of ground to cover!!! Summer has officially come to Tennessee, 80+ degree days (with the humidity from the Mississippi River coming in and the Tennessee River too, that equals a heat index of 90+ degrees, and we'll be in the 90's all week next week, so that means 100+ degree heat indices all summer long!!! I'll talk more to you this weekend.
May 23, 2008
Denise
May 23, 2008
Donna
May 26, 2008
Elline Surianello
May 26, 2008
Elline Surianello
May 27, 2008
Elline Surianello
May 28, 2008
Alex
Anyways, how are you?
May 28, 2008