tony

Profile Information:

Relationship Status:
Married
About Me:
father of 6 yr old little girl from Toronto Canada would like to chat and get to know more about what to expect and not to expect "for that matter" on alopecia.Been reading many comments and stories and find the people here very warm and open about this condition would love to get involved in groups and such discussions.
Are you age 18 or older?
Yes

Comment Wall:

  • marsha

    Hi There. My daughter is doing injections. She does not mind them at all. All they do is inject in the scalp this meds. Her hair is growing a little. I am really excited for her and so is she. Right now she is going every month. Well see how it goes. We are going on Wednesday I will find out what the name of the drug is and let you know...................Thanks Marsha
  • Mike Vandebeld

    Hello Tony...I am a dad, 2 kids, both healthy (thank god) ..but I have Ariata (small patches) all over my head..and I haven't done any treatments..but I may have some insight as I've had it for about 5-6 yrs now.....
  • Mike Vandebeld

    Hello Tony...Ufortunatley my experience with doctors is somewhat limited on this issue...as I still haven't found one with a satisfactory explanation about the condition...i feel i know more than them thru research on the net. I do understand that it can go into remission..but no one seem to know the trigger for this....I have so many spots that needles and injections just seem like a cruel alternative....so I just shave my head...(still look kinda goofy as my hair is black) so you can still see the bare patches...., the general conclusion I have reached is that it is kinda a mixed blessin' as I have received a superior immune system due to the elevated white cell count. I rarley, if ever get sick (even if the wife and kids are all sick) i sail through...I wish you the absolute best of luck with your daughter.... maybre the pediatricians know something about this in children that I do not...
    again good luck...I'll be interested to see how it works....
    MIke V
  • Mike Vandebeld

    Yeah..injections at that age would be traumatic i think...they told me it was upto 20 shots per spot and yeah no real guaranteof succes...but i have also heard of herbology and homiopatic remedies having profound effects...(myself I'm a sceptic) but others i've heard have had some good results... Yeah we're from calgary both me and my wife..we moved outta the city proper about 5-6 yr's ago into a town of around 1500, and I wouldn't trade it for life in the city...it's kinda like camping year round with full ammenities...anyway i hope you have success with your little one and pls let me know if it has positive effefcts....(even if not...) good to know...
    MIke v
  • Mike Vandebeld

    Hey man..Yeah we live in Sundre now...just west of Olds 1/2 hr or so and one hr nortwest of calgary.....
  • Julia

    Thank you so much for the comment...How is you daughter handling it? I think sometimes we as adults handle it much worse than the child does which sets up new insecurities for them...

    Well take care!
  • Stacey, Olivias mom

    Hi my daughter is also 6 years old with complete hair loss. This is her 2nd time the first time she was 3 was scared to death as to what it was my husband started going online before our Dr's appt and right off he found a site and knew this is what she had. It is hard when you see these other little girls with their long flowing hair and knowing that will probaly never be. But she is very confident and most kids are pretty good about it. I told her well everyone is born bald God just covered the ugly ones with hair. How is your daughter coping with this? Does she have a wig? Which we have discovered is not covered by medical. But found a great wig site that we have purchased off of for a partial wig that you can velcro from hat to hat, thats if she wants to wear one and all the power to her if she doesnt, I know with our daughter the sunscreen is from head to foot in case she heads out the door without her hat or hair! If you have and questions and to see if alot of their symptoms are alike let me know also be prepared if she has no lashes of minor eye infections she had her first this year!
  • tony

    Edyta took your advice and called did tell me they do it for free up to 17 but they never call back.Oh well will keep calling, hows everything with you just thought I'd say hi.