I've had alopecia universalis since 2007 and I've finally come to accept this is me now and I won't let alopecia hold me back from true happiness. I mean I do have those days when I say to myself "why me, why me", but those days come and go. I have a very supportive family and the support of my friends who help me through the tough times. I'm also very grateful for this website. I've met some wonderful people here who truly inspire me.
Hi Marisol, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
Hi Marisol!
Welcome. I hope you find some positive vibes with all the other members, here. I know I have and they have become someone I look forward to seeing every day even if it is from a computer screen. Love the picture of you with your mom and daughter!!! Nice to meet you and again, welcome!
i have au too. i wear wigs now and have found one i really love! finding a wig that i really liked made a huge difference for me. you may want to think about trying some one day. jenn
i have a wig that looks like jenny mcarthy's new bob haircut. i love it! it is called codi by rene of paris. this is all fairly new to me too. it has been about 2 years since i lost it. i was a mess for the first year and then i started to accept it slowly over time. now i am ok with it.
Bonjour Marisol,
Welcome to this site. I've become AU 6 years ago... Things have also been hard but with time, it's getting better. Did you go to Louisville to the NAAF conference this year? I think we were in the same session on Sunday AM (women and alopecia).
Diane
Yes, it was intresting because it was my first conference. I met lots of new fiends face to face for the first time too. I hope you met some new female friends to talk about alopecia with.
i actually have gotten some wigs online without even trying them on. my rule is what cut and color used to look good on me, still looks good on me.....so i don't venture away from cuts and colors that i used to have before my hair fell out. but when i work out, i just wear a hat so it doesn't get gross and sweaty. the online site i have used is loris wigs site. it has pretty good prices. jenn
Marisol what a pretty name! Welcome! I wanted to let you know that I started a Chicagoland group on here if you're interested in joining us! Just go to the Groups tab up top and search for the Chicago group. Hope to see you in there!
By the way, if you need to talk, let me know. I have been through it all! Wrote a book about it, too (just out), called "If Your Hair Falls Out, Keep Dancing!" That's my philosophy! (took awhile to get there!)
Hi Marisol! Glad you joined the Chicago group. ;) No, no treatments anymore for me. I did the steroid injections twice and that was enough for me. My loss progressed so quickly that the injections seemed pointless to me. Also they were painful and I hated the dents in my head that they caused. But that's just me. I've made my peace with it and decided to just let nature take its course. ;)
When I was doing the injections at first I had 2 very small spots of regrowth, but didn't see much at all. But then actually yesterday I was looking in the mirror and I saw several new white fuzz spots. I'm trying not to get too hopeful, but it was pretty exciting to see!
You can order my book in stores, but it's easiest to get it online. Click the link at the bottom of my page, or cut and paste: www.leslieannbutler.npauthors.com, or go to any online bookstore like Amazon or Barnes & Noble.
Let me know how you like it, okay?
Hugs!
Marisol -
Trust me when I say it continues to get easier. It is amazing what we can adapt to. My family was worried about me when I was first diagnosed because I have always been sensitive in nature but now, I don't even remember what it was like to have hair and have completely adjusted to it. It becomes normal if that sounds crazy. You are in the right place here though, you will get so much information and support! Your photos are amazing, what great shape you are in, I am jealous lol. Hope to talk to you again! :O)
You will adjust, it takes time as with anything. I have had AA for about 8 years now and never had re-growth. I was lucky to lose it slowly and I think that helped my outlook on the whole thing because I was able to adjust as it was progressing. I went from hiding bald spots with believe it or not, a powder the color of my hair, to wearing partial hair pieces to wearing a full wig. I didn't have to wear anything for at least 6 or 7 months. I tried some treatments but I have a dermatologist who is a family friend and he was up front with me from the beginning about there being no cure or miracle out there. We tried some things, when it didn't work, I gave up on chasing new treatments and I felt better as soon as I did that and that is when I really came to accept my condition. We are all different though and some people have great results with treatment and do go into remission. I wish for you all the best and you are in the right place here.
Hi, Marisol. We really haven't touched base since we met at this year's NAAF conference, so I thought I'd send you personal note to say hi and see how you and your mom are doing. Just in case you're wondering, I thought about you today because I saw the name "Marisol" on another website. Of course, I thought to myself, "Hey, I know a Marisol!" :-) In any event, I hope that you're treating life well and reaping every benefit of doing so. I'm really honored that you joined Alopecia World and trust that one day you will find our beloved community to be a great source of information and inspiration. Well, I hope to hear from you soon and very soon, as some say in church. Bye for now, Marisol. :-)
Hi
would love to get together there is another lady in my area with AA. I've been dealing with this a little over a year. For the first yr I didn't know anyone with it. It's nice to have this site and new friends.
Roger
Roger.
Jun 27, 2008
Cheryl, Co-founder
Jun 27, 2008
Billie
Welcome. I hope you find some positive vibes with all the other members, here. I know I have and they have become someone I look forward to seeing every day even if it is from a computer screen. Love the picture of you with your mom and daughter!!! Nice to meet you and again, welcome!
Jun 27, 2008
Dawn
Jun 27, 2008
jennifer
Jun 27, 2008
Dawn
Jun 27, 2008
jennifer
Jun 27, 2008
Diane
Welcome to this site. I've become AU 6 years ago... Things have also been hard but with time, it's getting better. Did you go to Louisville to the NAAF conference this year? I think we were in the same session on Sunday AM (women and alopecia).
Diane
Jun 27, 2008
Roger
Roger.
Jun 28, 2008
Roger
Jun 28, 2008
Roger
Jun 28, 2008
jennifer
Jun 28, 2008
Mandy
Jun 28, 2008
beauty
Jun 29, 2008
LeslieAnn Butler
Welcome to Alopecia World! How are you doing today? I've had aa for about 30 years. I just wanted to say hello!
LeslieAnn
Jun 29, 2008
Fitzy
Jun 29, 2008
LeslieAnn Butler
Jun 30, 2008
LeslieAnn Butler
Jun 30, 2008
Mandy
Jun 30, 2008
Mandy
Jul 1, 2008
LeslieAnn Butler
Let me know how you like it, okay?
Hugs!
Jul 1, 2008
Dina
Trust me when I say it continues to get easier. It is amazing what we can adapt to. My family was worried about me when I was first diagnosed because I have always been sensitive in nature but now, I don't even remember what it was like to have hair and have completely adjusted to it. It becomes normal if that sounds crazy. You are in the right place here though, you will get so much information and support! Your photos are amazing, what great shape you are in, I am jealous lol. Hope to talk to you again! :O)
Jul 4, 2008
Dina
Jul 6, 2008
Mandy
Jul 10, 2008
rj, Co-founder
Jul 29, 2008
Mandy
Aug 4, 2008
Mandy
Hugs,
Mandy
Aug 6, 2008
Roger
Are you planning to go to next years conference in Houston?
Roger.
Aug 8, 2008
Roger
Aug 11, 2008
Jessica
thanks for accepting my friend request.
I'm in woodridge not to far from you.
hope all is well and will write more later
jess
Aug 12, 2008
Jessica
would love to get together there is another lady in my area with AA. I've been dealing with this a little over a year. For the first yr I didn't know anyone with it. It's nice to have this site and new friends.
jessica
Aug 15, 2008