DesertAngel

Female

Grey Street

United States

Profile Information:

Relationship Status:
Married
About Me:
I am married and the mother of three. I also have scarring alopecia and still haven't told my husband...Oh, he knows that something happened the last time I went to the salon. And he knows that because of what happened I'm now wearing a wig. But I just haven't gotten around to telling him that I was diagnosed, in July, with scarring alopecia. I know that I'm a terrible wife.

I'm still in denial. I still haven't really looked at that balding, bumpy patch on the top of my head. I haven't taken any pictures. I haven't had my 'melt down' cry yet. The tears just leak out. I'm afraid. Oh, he wouldn't care if I wore a multicolored wig with a leather chin strap! I'm afraid that once I tell him, my diagnosis is final. Do you know what I mean? Once I say it out loud to some one other than me, I have to accept that I will never again go to a hair salon.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes

Comment Wall:

  • Cheryl, Co-founder

    Hi, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

    Sep 18, 2008

  • rj, Co-founder

    Hi, DesertAngel. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

    Sep 18, 2008

  • LeslieAnn Butler

    Hello Angel,
    How are you today? I wanted to say hello and welcome you. I've had universalis for many years. How long have you had scarring alopecia?
    LeslieAnn

    Sep 18, 2008

  • JeffreySF

    Hello Angel,

    Welcome to Alopecia World.
    I don't think you are a terrible wife. I think you are in shock.
    I know one thing, you will find loads of support here.
    Cry me a river when you are ready.

    Jeff

    Sep 19, 2008

  • Roger

    Welcome.

    Roger.

    Sep 19, 2008

  • Linda

    Hello DesertAngel, I feel you@saying it out loud and it being reality. Although I've accepted Alopecia a long time ago, there are things that I keep inside, hoping that they go away and I won't have to say a word to anyone...if I do, it becomes reality and may never go away. Be good to yourself, the support you'll get from your husband will do you good.

    Sep 19, 2008

  • JeffreySF

    You're welcome.
    I know you will really enjoy it here especially if you get my humor

    Welcome Again,

    Jeff

    Sep 19, 2008

  • Margie

    Hi DesertAngel, I just saw you on chat. I took a peek at your bio. I'm so sorry to hear what you're going through. You are going to find so much support here! This site has been a life saver for me in coming to grips with son having this.

    Sep 22, 2008

  • DesertAngel

    I've been having a rough time these past 2 days. I'm having minor flare-ups on my face, back if my neck, on my scalp. They're like pimples, but flatter and they hurt when touched. I know that when they go away, they'll take hair with them. I'm also experiencing a lot of breakage. I can run my hand across my head (like when you brush something out of your hair) and see my broken hair 'rain' down.

    I am so very unhappy right now.

    My next appointment is in Oct. I was going to ask for another steroid shot but there may be nothing left by then. I don't know how far this scarring will go. Will it cover my whole head? So far its taken the hair from around my edges and the bald spot on my crown keeps getting wider. That will be completely bald soon. I was thinking that if the rest of my hair grows longer, I could cover my crown...

    I remember this time last year. I wore my hair in curls...

    Sep 22, 2008

  • DesertAngel

    I'm feeling a lot better now! I used henna yesterday and it calmed my scalp down. I'm also coming to the realization that this is not a death sentence, not the end of the world, and I am definitely not alone.

    Life is good! :-)

    Sep 28, 2008